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I kua na'u "Let me carry out your last wishes" Clinical trial protocol to promote advance care planning among native Hawaiian populations.
Quintiliani, Lisa M; Kamaka, Martina; Henault, Lori; Antonio, Mapuana C K; Sentell, Tetine; Spencer, Kimberley; Akaka, Gerard; Honda, Liana K Laea; Hanakeawe, Damien; Dillard, Adrienne; Kekauoha, B Puni; Davis, Aretha Delight; Seitz, Rae; Cabral, Howard J; Volandes, Angelo; Leimomi Mala Mau, Marjorie K; Paasche-Orlow, Michael K.
Afiliación
  • Quintiliani LM; Department of Medicine, Tufts University School of Medicine, Tufts Medical Center, USA. Electronic address: lisa.quintiliani@tuftsmedicine.org.
  • Kamaka M; Department of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
  • Henault L; Boston Medical Center, USA.
  • Antonio MCK; Native Hawaiian and Indigenous Health, Thompson School of Social Work & Public Health, University of Hawaii, USA.
  • Sentell T; Department of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
  • Spencer K; Department of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
  • Akaka G; The Queens Health System, USA.
  • Honda LKL; The Queens Health System, USA.
  • Hanakeawe D; The Queens Health System, USA.
  • Dillard A; Department of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA; Kula No Na Po'e Hawaii o Papakolea, Kewalo, Kalawahine, USA.
  • Kekauoha BP; Kula No Na Po'e Hawaii o Papakolea, Kewalo, Kalawahine, USA.
  • Davis AD; ACP Decisions, USA.
  • Seitz R; Hui Pohala, USA.
  • Cabral HJ; Department of Biostatistics, Boston University School of Public Health, USA.
  • Volandes A; Department of Medicine, Massachusetts General Hospital, Harvard Medical School, USA.
  • Leimomi Mala Mau MK; Department of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
  • Paasche-Orlow MK; Department of Medicine, Tufts University School of Medicine, Tufts Medical Center, USA.
Contemp Clin Trials ; 135: 107365, 2023 Dec.
Article en En | MEDLINE | ID: mdl-37884121
Advance Care Planning (ACP) is a communication process about serious illness decision making designed to inform patients of possible medical options. Native Hawaiians consistently have low rates of ACP and low use of palliative and hospice care services. Our multidisciplinary community and research group partnered to create I kua na'u "Let Me Carry Out Your Last Wishes," an ACP intervention featuring culturally tailored videos and are now testing its efficacy. Focus groups and informant interviews were conducted with Native Hawaiian community members to ensure the curriculum honored the history, opinions, and culture of Native Hawaiians. Native Hawaiian culture has traditionally been an oral culture; the spoken word transmitted the mo'olelo, stories, traditions, histories and genealogies, which merges seamlessly with video media. The I kua na'u intervention included multiple educational sessions enhanced with videos (informational and personal). The specific aims are to compare ACP knowledge (primary outcome) and readiness for ACP engagement, ACP preferences, decisional conflict, and ACP completion rates via electronic medical record review (secondary outcomes) in 220 Native Hawaiians over age 55 in: (a) a randomized controlled trial of 110 people recruited from ambulatory clinics, and (b) a pre-post study design among 110 people living on Hawaiian Homestead communities located on lands set aside for Native Hawaiians or assisted living. Our protocol aims to evaluate the efficacy of our video-based educational intervention for Native Hawaiians to support decision making in this community and decrease disparities in serious illness care. Clinical Trial Registration Number: NCT04771208.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Planificación Anticipada de Atención / Nativos de Hawái y Otras Islas del Pacífico Límite: Humans / Middle aged País/Región como asunto: America do norte Idioma: En Revista: Contemp Clin Trials Asunto de la revista: MEDICINA / TERAPEUTICA Año: 2023 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Planificación Anticipada de Atención / Nativos de Hawái y Otras Islas del Pacífico Límite: Humans / Middle aged País/Región como asunto: America do norte Idioma: En Revista: Contemp Clin Trials Asunto de la revista: MEDICINA / TERAPEUTICA Año: 2023 Tipo del documento: Article Pais de publicación: Estados Unidos