Together4RD position statement on collaboration between European reference networks and industry.

Hedley, Victoria; Bolz-Johnson, Matt; Hernando, Ines; Kenward, Rosalind; Nabbout, Rima; Romero, Clara; Schaefer, Franz; Upadhyaya, Sheela

Hedley, Victoria; Bolz-Johnson, Matt; Hernando, Ines; Kenward, Rosalind; Nabbout, Rima; Romero, Clara; Schaefer, Franz; Upadhyaya, Sheela.

Afiliación

Hedley V; Newcastle University, Newcastle Upon Tyne, UK. vjhedley@hotmail.co.uk.
Bolz-Johnson M; EURORDIS (Rare Diseases Europe), Paris, France.
Hernando I; EURORDIS (Rare Diseases Europe), Paris, France.
Kenward R; FIPRA International, Brussels, Belgium.
Nabbout R; Pediatric Neurology Department, Hôpital Necker Enfants Malades, APHP, Universite Paris Cité, Institut Imagine, Paris, France.
Romero C; FIPRA International, Brussels, Belgium.
Schaefer F; Center For Pediatrics and Adolescent Medicine, University of Heidelberg, Heidelberg, Germany.
Upadhyaya S; FIPRA International, Brussels, Belgium.

Orphanet J Rare Dis ; 18(1): 272, 2023 09 05.

Article en En | MEDLINE | ID: mdl-37670358

Asunto(s)

Enfermedades Raras; Humanos; Europa (Continente)

Palabras clave

ERNs; European reference network; Networking; Publicprivate-partnership; Rare disease; Rare diseases; Research

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedades Raras Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2023 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Reino Unido

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