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Assessing the impact of grief on quality of life, work productivity, and health outcomes for parents bereaved from SMA: A study protocol.
Riley, Abigail G; Mulé, Christina M; Lerner, Debra; Belter, Lisa; O'Toole, Colleen McCarthy; Kowal, Stacey; Fox, David; Shapouri, Sheila; Vesel, Tamara; Lavelle, Tara A.
Afiliación
  • Riley AG; Center for the Evaluation of Value and Risk in Health, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.
  • Mulé CM; Department of Pediatrics, University of Rochester Medical Center, Rochester, NY, USA.
  • Lerner D; Department of Pediatrics, Tufts Medical Center, Tufts University School of Medicine, Boston, MA, USA.
  • Belter L; Program on Health, Work and Productivity, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center and Tufts University School of Medicine Department of Psychiatry, Boston, MA, USA.
  • O'Toole CM; Cure SMA, Elk Grove Village, IL, USA.
  • Kowal S; Cure SMA, Elk Grove Village, IL, USA.
  • Fox D; Genentech, Inc, South San Francisco, CA, USA.
  • Shapouri S; Genentech, Inc, South San Francisco, CA, USA.
  • Vesel T; Genentech, Inc, South San Francisco, CA, USA.
  • Lavelle TA; Division of Palliative Care, Department of Medicine, Tufts Medical Center, Boston, MA, USA.
Cost Eff Resour Alloc ; 21(1): 55, 2023 Aug 23.
Article en En | MEDLINE | ID: mdl-37612702

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Aspecto: Patient_preference Idioma: En Revista: Cost Eff Resour Alloc Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Aspecto: Patient_preference Idioma: En Revista: Cost Eff Resour Alloc Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido