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Turning It Over to God: African American Assisted Living Residents' End-of-Life Preferences and Advance Care Planning.
Kemp, Candace L; Skipper, Antonius D; Bender, Alexis A; Perkins, Molly M.
Afiliación
  • Kemp CL; The Gerontology Institute, Georgia State University, Atlanta, Georgia, USA.
  • Skipper AD; Department of Sociology, Georgia State University, Atlanta, Georgia, USA.
  • Bender AA; The Gerontology Institute, Georgia State University, Atlanta, Georgia, USA.
  • Perkins MM; Division of Geriatrics & Gerontology, Department of Medicine, Emory School of Medicine, Atlanta, Georgia, USA.
J Gerontol B Psychol Sci Soc Sci ; 78(10): 1747-1755, 2023 10 09.
Article en En | MEDLINE | ID: mdl-37466307
OBJECTIVES: Assisted living (AL), a popular long-term care setting for older Americans, increasingly is a site for end-of-life care. Although most residents prefer AL to be their final home, relatively little is known about end-of-life preferences and advance care planning, especially among African American residents. Our research addresses this knowledge gap. METHODS: Informed by grounded theory, we present an analysis of qualitative data collected over 2 years in a 100-bed AL community catering to African American residents. Data consisted of field notes from participant observation conducted during 310 site visits and 818 observation hours, in-depth interviews with 25 residents, and a review of their AL records. RESULTS: Residents varied in their end-of-life preferences and advance care planning, but united in the belief that God was in control. We identified "Turning it over to God" as an explanatory framework for understanding how this group negotiated end-of-life preferences and advance care planning. Individual-level resident factors (e.g., age, pain, and function) and factors reflecting broader cultural and societal influences, including health literacy and care experiences, were influential. DISCUSSION: Contradictions arose from turning it over to God, including those between care preferences, planning, and anticipated or actual end-of-life outcomes.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cuidado Terminal / Planificación Anticipada de Atención Tipo de estudio: Prognostic_studies / Qualitative_research Aspecto: Equity_inequality / Patient_preference Límite: Aged / Humans País/Región como asunto: America do norte Idioma: En Revista: J Gerontol B Psychol Sci Soc Sci Asunto de la revista: CIENCIAS SOCIAIS / GERIATRIA / PSICOLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cuidado Terminal / Planificación Anticipada de Atención Tipo de estudio: Prognostic_studies / Qualitative_research Aspecto: Equity_inequality / Patient_preference Límite: Aged / Humans País/Región como asunto: America do norte Idioma: En Revista: J Gerontol B Psychol Sci Soc Sci Asunto de la revista: CIENCIAS SOCIAIS / GERIATRIA / PSICOLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos