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A patient-driven registry on Behçet's disease: the AIDA for patients pilot project.
Gaggiano, Carla; Del Bianco, Alessandra; Sota, Jurgen; Gentileschi, Stefano; Ruscitti, Piero; Giacomelli, Roberto; Piga, Matteo; Crisafulli, Francesca; Monti, Sara; Emmi, Giacomo; De Paulis, Amato; Vitale, Antonio; Tarsia, Maria; Caggiano, Valeria; Nuzzolese, Rossana; Parretti, Veronica; Fabiani, Claudia; Lopalco, Giuseppe; Maier, Armin; Cattalini, Marco; Rigante, Donato; Govoni, Marcello; Li Gobbi, Francesca; Guiducci, Serena; Parronchi, Paola; Marino, Achille; Ciccia, Francesco; Maggio, Maria Cristina; Aragona, Emma; Bartoloni, Elena; Iagnocco, Annamaria; Viapiana, Ombretta; Sebastiani, Gian Domenico; Guerriero, Silvana; Insalaco, Antonella; Del Giudice, Emanuela; Conti, Giovanni; Barone, Patrizia; Olivieri, Alma Nunzia; Brucato, Antonio; Carubbi, Francesco; Triggianese, Paola; Mauro, Angela; Tosi, Gian Marco; Fonollosa, Alex; Giardini, Henrique Ayres Mayrink; Ragab, Gaafar; Tharwat, Samar; Hernández-Rodríguez, José; Sfikakis, Petros P.
Afiliación
  • Gaggiano C; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Del Bianco A; S.I.M.B.A (Associazione Italiana Sindrome e Malattia di Behçet), Pontedera, Italy.
  • Sota J; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Gentileschi S; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Ruscitti P; Rheumatology Unit, Department of Biotechnological & Applied Clinical Sciences, University of L'Aquila, L'Aquila, Italy.
  • Giacomelli R; Rheumatology and Immunology Unit, Department of Medicine, University of Rome "Campus Biomedico", Rome, Italy.
  • Piga M; Rheumatology Unit, Department of Medical Sciences, University and AOU of Cagliari, Cagliari, Italy.
  • Crisafulli F; Rheumatology and Clinical Immunology, Department of Clinical and Experimental Sciences, University of Brescia and Spedali Civili [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Brescia, Italy.
  • Monti S; Division of Rheumatology, Fondazione IRCCS Policlinico San Matteo [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases (RITA) Center], Pavia, Italy.
  • Emmi G; Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy.
  • De Paulis A; Centre for Inflammatory Diseases, Department of Medicine, Monash Medical Centre, Monash University, Clayton, VIC, Australia.
  • Vitale A; Department of Translational Medical Sciences, Section of Clinical Immunology, University of Naples Federico II, Naples, Italy.
  • Tarsia M; Center for Basic and Clinical Immunology Research (CISI), WAO Center of Excellence, University of Naples Federico II, Naples, Italy.
  • Caggiano V; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Nuzzolese R; Clinical Paediatrics, Department of Molecular Medicine and Development, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Parretti V; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Fabiani C; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Lopalco G; Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Maier A; Ophthalmology Unit, Department of Medicine, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Cattalini M; Rheumatology Unit, Department of Emergency and Organ Transplantation, University of Bari, Bari, Italy.
  • Rigante D; Rheumatology Unit, Department of Medicine, Central Hospital of Bolzano, Bolzano, Italy.
  • Govoni M; Pediatric Clinic, University of Brescia and Spedali Civili di Brescia [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Brescia, Italy.
  • Li Gobbi F; Department of Life Sciences and Global Health, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy.
  • Guiducci S; Rare Diseases and Periodic Fevers Research Centre, Università Cattolica del Sacro Cuore, Rome, Italy.
  • Parronchi P; Rheumatology Unit, Department of Medical Sciences, Azienda Ospedaliero-Universitaria S. Anna-Ferrara, University of Ferrara, Ferrara, Italy.
  • Marino A; Rheumatology Unit, Hospital S. Giovanni di Dio, Azienda USL-Toscana Centro, Florence, Italy.
  • Ciccia F; Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy.
  • Maggio MC; Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy.
  • Aragona E; Immunology and Cellular Therapies Unit, University Hospital Careggi, Florence, Italy.
  • Bartoloni E; Unit of Pediatric Rheumatology, Azienda Socio-Sanitaria Territoriale (ASST) Gaetano Pini-Centro Specialistico Ortopedico Traumatologico (CTO), Milan, Italy.
  • Iagnocco A; Department of Precision Medicine, Università Degli Studi Della Campania Luigi Vanvitelli, Naples, Italy.
  • Viapiana O; University Department of Health Promotion, Mother and Child Care, Internal Medicine and Medical Specialties (PROMISE) "G. D'Alessandro", University of Palermo, Palermo, Italy.
  • Sebastiani GD; Division of Gastroenterology, Ospedali Riuniti Villa Sofia-Vincenzo Cervello, Palermo, Italy.
  • Guerriero S; Rheumatology Unit, Department of Medicine, University of Perugia, Perugia, Italy.
  • Insalaco A; Academic Rheumatology Center, Dipartimento Scienze Cliniche e Biologiche, Università degli Studi di Torino, Turin, Italy.
  • Del Giudice E; Rheumatology Unit, Department of Medicine, University of Verona, Verona, Italy.
  • Conti G; Rheumatology Unit, San Camillo - Forlanini Hospital, Rome, Italy.
  • Barone P; Department of Ophthalmology and Otolaryngology, University of Bari, Bari, Italy.
  • Olivieri AN; Division of Rheumatology, Ospedale Pediatrico Bambino Gesù, IRCCS [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases (RITA) Center], Rome, Italy.
  • Brucato A; Pediatric and Neonatology Unit, Department of Maternal Infantile and Urological Sciences, Sapienza University of Rome, Latina, Italy.
  • Carubbi F; Pediatric Nephrology and Rheumatology Unit, Azienda Ospedaliero Universitaria (AOU) G Martino, Messina, Italy.
  • Triggianese P; Department of Clinical and Experimental Medicine, University of Catania, Catania, Italy.
  • Mauro A; Department of Woman, Child and of General and Specialized Surgery, University of Campania "Luigi Vanvitelli", Naples, Italy.
  • Tosi GM; Department of Biomedical and Clinical Sciences, Fatebenefratelli Hospital, Università di Milano, Milan, Italy.
  • Fonollosa A; Department of Life, Health & Environmental Sciences and Internal Medicine and Nephrology Unit, Department of Medicine, University of L'Aquila and ASL Avezzano-Sulmona-L'Aquila, San Salvatore Hospital, L'Aquila, Italy.
  • Giardini HAM; Rheumatology, Allergology and Clinical Immunology, Department of System Medicine, University of Rome Tor Vergata, Rome, Italy.
  • Ragab G; Pediatric Rheumatology Unit, Department of Childhood and Developmental Medicine, Fatebenefratelli-Sacco Hospital, Milan, Italy.
  • Tharwat S; Ophthalmology Unit, Department of Medicine, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.
  • Hernández-Rodríguez J; Department of Ophthalmology, Biocruces Bizkaia Health Research Institute, Cruces University Hospital, University of the Basque Country, Barakaldo, Spain.
  • Sfikakis PP; Rheumatology Division, Hospital das Clinicas (HCFMUSP), Faculdade de Medicina, Universidade de São Paulo, São Paulo, Brazil.
Front Med (Lausanne) ; 10: 1188021, 2023.
Article en En | MEDLINE | ID: mdl-37396916
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies Aspecto: Patient_preference Idioma: En Revista: Front Med (Lausanne) Año: 2023 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies Aspecto: Patient_preference Idioma: En Revista: Front Med (Lausanne) Año: 2023 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Suiza