Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies.

Nevin, Suzanne M; Wakefield, Claire E; Dadich, Ann; LeMarne, Fleur; Macintosh, Rebecca; Beavis, Erin; Sachdev, Rani; Bye, Ann; Nunn, Kenneth; Palmer, Elizabeth E

Nevin, Suzanne M; Wakefield, Claire E; Dadich, Ann; LeMarne, Fleur; Macintosh, Rebecca; Beavis, Erin; Sachdev, Rani; Bye, Ann; Nunn, Kenneth; Palmer, Elizabeth E.

Afiliación

Nevin SM; School of Women's and Children's Health, UNSW Medicine and Health, UNSW Sydney, Australia.
Wakefield CE; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.
Dadich A; School of Women's and Children's Health, UNSW Medicine and Health, UNSW Sydney, Australia.
LeMarne F; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.
Macintosh R; School of Business, Western Sydney University, Locked Bag 1797, Penrith, NSW 2751, Australia.
Beavis E; School of Women's and Children's Health, UNSW Medicine and Health, UNSW Sydney, Australia.
Sachdev R; Department of Neurology, Sydney Children's Hospital, Randwick, Australia.
Bye A; Centre for Clinical Genetics, Sydney Children's Hospital, Randwick, Australia.
Nunn K; Department of Neurology, Sydney Children's Hospital, Randwick, Australia.
Palmer EE; School of Women's and Children's Health, UNSW Medicine and Health, UNSW Sydney, Australia.

PEC Innov ; 1: 100014, 2022 Dec.

Article en En | MEDLINE | ID: mdl-37364015

Palabras clave

Codesign; Parent mental health; Person-based; Positive psychology; Qualitative research

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: PEC Innov Año: 2022 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Países Bajos

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