Your browser doesn't support javascript.
loading
Trofinetide for the treatment of Rett syndrome: a randomized phase 3 study.
Neul, Jeffrey L; Percy, Alan K; Benke, Timothy A; Berry-Kravis, Elizabeth M; Glaze, Daniel G; Marsh, Eric D; Lin, Tim; Stankovic, Serge; Bishop, Kathie M; Youakim, James M.
Afiliación
  • Neul JL; Vanderbilt Kennedy Center, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Percy AK; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Benke TA; Children's Hospital of Colorado and University of Colorado School of Medicine, Aurora, CO, USA.
  • Berry-Kravis EM; Rush University Medical Center, Chicago, IL, USA.
  • Glaze DG; Texas Children's Hospital and Baylor College of Medicine, Houston, TX, USA.
  • Marsh ED; Children's Hospital of Philadelphia, Philadelphia, PA, USA.
  • Lin T; Acadia Pharmaceuticals Inc., San Diego, CA, USA.
  • Stankovic S; Acadia Pharmaceuticals Inc., San Diego, CA, USA.
  • Bishop KM; Acadia Pharmaceuticals Inc., San Diego, CA, USA.
  • Youakim JM; Acadia Pharmaceuticals Inc., San Diego, CA, USA. jyouakim@acadia-pharm.com.
Nat Med ; 29(6): 1468-1475, 2023 Jun.
Article en En | MEDLINE | ID: mdl-37291210
Rett syndrome is a rare, genetic neurodevelopmental disorder. Trofinetide is a synthetic analog of glycine-proline-glutamate, the N-terminal tripeptide of the insulin-like growth factor 1 protein, and has demonstrated clinical benefit in phase 2 studies in Rett syndrome. In this phase 3 study ( https://clinicaltrials.gov identifier NCT04181723 ), females with Rett syndrome received twice-daily oral trofinetide (n = 93) or placebo (n = 94) for 12 weeks. For the coprimary efficacy endpoints, least squares mean (LSM) change from baseline to week 12 in the Rett Syndrome Behaviour Questionnaire for trofinetide versus placebo was -4.9 versus -1.7 (P = 0.0175; Cohen's d effect size, 0.37), and LSM Clinical Global Impression-Improvement at week 12 was 3.5 versus 3.8 (P = 0.0030; effect size, 0.47). For the key secondary efficacy endpoint, LSM change from baseline to week 12 in the Communication and Symbolic Behavior Scales Developmental Profile Infant-Toddler Checklist Social Composite score was -0.1 versus -1.1 (P = 0.0064; effect size, 0.43). Common treatment-emergent adverse events included diarrhea (80.6% for trofinetide versus 19.1% for placebo), which was mostly mild to moderate in severity. Significant improvement for trofinetide compared with placebo was observed for the coprimary efficacy endpoints, suggesting that trofinetide provides benefit in treating the core symptoms of Rett syndrome.
Asunto(s)

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Síndrome de Rett Tipo de estudio: Clinical_trials / Prognostic_studies Límite: Female / Humans Idioma: En Revista: Nat Med Asunto de la revista: BIOLOGIA MOLECULAR / MEDICINA Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Síndrome de Rett Tipo de estudio: Clinical_trials / Prognostic_studies Límite: Female / Humans Idioma: En Revista: Nat Med Asunto de la revista: BIOLOGIA MOLECULAR / MEDICINA Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos