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Validation of the parent-proxy version of the pediatric Charcot-Marie-Tooth disease quality of life instrument for children aged 0-7 years.
Wu, Tong Tong; Finkel, Richard S; Siskind, Carly E; Feely, Shawna M E; Burns, Joshua; Reilly, Mary M; Muntoni, Francesco; Milev, Evelin; Estilow, Timothy; Shy, Michael E; Ramchandren, Sindhu.
Afiliación
  • Wu TT; Department of Biostatistics and Computational Biology, University of Rochester, Rochester, New York, USA.
  • Finkel RS; Center for Experimental Neurotherapeutics, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
  • Siskind CE; Department of Neurology, Stanford University, Stanford, California, USA.
  • Feely SME; Department of Neurology, University of Iowa Hospitals and Clinics, Iowa City, Iowa, USA.
  • Burns J; Faculty of Medicine and Health, University of Sydney School of Health Sciences, Sydney, New South Wales, Australia.
  • Reilly MM; Pediatric Gait Analysis Service of New South Wales, Sydney Children's Hospitals Network, Sydney, New South Wales, Australia.
  • Muntoni F; Centre for Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.
  • Milev E; Centre for Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.
  • Estilow T; Dubowitz Neuromuscular Centre, NIHR Great Ormond Street Hospital Biomedical Research Centre, UCL Great Ormond Street Institute of Child Health and Great Ormond Street Hospital, London, UK.
  • Shy ME; Centre for Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.
  • Ramchandren S; Dubowitz Neuromuscular Centre, NIHR Great Ormond Street Hospital Biomedical Research Centre, UCL Great Ormond Street Institute of Child Health and Great Ormond Street Hospital, London, UK.
J Peripher Nerv Syst ; 28(3): 382-389, 2023 09.
Article en En | MEDLINE | ID: mdl-37166413
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Enfermedad de Charcot-Marie-Tooth Tipo de estudio: Observational_studies / Prognostic_studies / Qualitative_research Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Humans / Infant / Newborn Idioma: En Revista: J Peripher Nerv Syst Asunto de la revista: NEUROLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Enfermedad de Charcot-Marie-Tooth Tipo de estudio: Observational_studies / Prognostic_studies / Qualitative_research Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Humans / Infant / Newborn Idioma: En Revista: J Peripher Nerv Syst Asunto de la revista: NEUROLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos