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Sharing space at the research table: exploring public and patient involvement in a methodology priority setting partnership.
Burke, Nikita N; Stewart, Derek; Tierney, Theresa; Worrall, Andrew; Smith, Maureen; Elliott, Jim; Beecher, Claire; Devane, Declan; Biesty, Linda.
Afiliación
  • Burke NN; Evidence Synthesis Ireland and Cochrane Ireland, University of Galway, Galway, Ireland. nikita.burke@universityofgalway.ie.
  • Stewart D; School of Nursing and Midwifery, Aras Moyola, University of Galway, Galway, Ireland. nikita.burke@universityofgalway.ie.
  • Tierney T; Honorary Professor, University of Galway, Galway, Ireland.
  • Worrall A; Public Co-Author, Health Research Board Primary Care Clinical Trials Network Ireland, Galway, Ireland.
  • Smith M; Public Co-Author, Evidence Synthesis Ireland and Staffordshire, Staffordshire, UK.
  • Elliott J; Public Co-Author, Cochrane Consumer Network Executive, Ottawa, Canada.
  • Beecher C; Public Co-Author, Evidence Synthesis Ireland, Galway, Ireland.
  • Devane D; Evidence Synthesis Ireland and Cochrane Ireland, University of Galway, Galway, Ireland.
  • Biesty L; School of Nursing and Midwifery, Aras Moyola, University of Galway, Galway, Ireland.
Res Involv Engagem ; 9(1): 29, 2023 May 02.
Article en En | MEDLINE | ID: mdl-37131232
Public and patient involvement is well known in research where patients share their lived experience for a health-related study. However, the role of public and patients in methodology research (research that aims to improve the quality of research) is not clear.A priority-setting partnership brings patients, carers, clinicians and other stakeholders together to jointly identify priorities for research. We looked at public involvement in a priority-setting partnership in how we plan, do, and share the results of rapid reviews­the Priority III project. We wanted to do this to better support public involvement in future research.We explored the processes of Priority III and asked the members of the Priority III steering group for their views and experiences of public involvement in the project. We found three themes:1: We all bring unique qualities to the table.2: We need support and space at the table.3: We all benefit from working together.Communication and trust were found to be important across all themes. Even though public partners felt outside of their comfort zones when starting the project, they significantly helped the project, brought unique views, ideas and practical solutions. Support and safe spaces were needed to help overcome challenges due to the complex methodological concepts. Researchers and public partners learned from one another, and developed relationships with a feeling of being "partners in research". Our findings offer insight into what helped public involvement in this research context. We give examples of practical actions and suggestions for future research.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies / Qualitative_research Idioma: En Revista: Res Involv Engagem Año: 2023 Tipo del documento: Article País de afiliación: Irlanda Pais de publicación: Reino Unido
Texto completo
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Imprimir
XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies / Qualitative_research Idioma: En Revista: Res Involv Engagem Año: 2023 Tipo del documento: Article País de afiliación: Irlanda Pais de publicación: Reino Unido