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Implementation of standardized cystic fibrosis care algorithm to improve the center data-quality improvement project international collaboration.
Gokdemir, Yasemin; Eralp, Ela Erdem; Ergenekon, Almala Pinar; Yilmaz Yegit, Cansu; Yanaz, Muruvvet; Mursaloglu, Hakan; Uzunoglu, Burcu; Kocamaz, Damla; Tastan, Gamze; Kenis Coskun, Ozge; Filbrun, Amy; Enochs, Catherine; Bouma, Sandra; Iwanicki, Courtney; Karakoc, Fazilet; Nasr, Samya Z; Karadag, Bulent.
Afiliación
  • Gokdemir Y; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey. Electronic address: yasemingokdemir@yahoo.com.tr.
  • Eralp EE; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Ergenekon AP; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Yilmaz Yegit C; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Yanaz M; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Mursaloglu H; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey; King's College Hospital, Department of Emergency Medicine, London, England, United Kingdom.
  • Uzunoglu B; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Kocamaz D; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Tastan G; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Kenis Coskun O; Marmara University School of Medicine, Department of Physical Therapy and Rehabilitation, Istanbul, Turkey.
  • Filbrun A; Division of Pediatric Pulmonology, University of Michigan, Ann Arbor, Michigan, United States. Electronic address: afilbrun@med.umich.edu.
  • Enochs C; Division of Pediatric Pulmonology, University of Michigan, Ann Arbor, Michigan, United States. Electronic address: cboehl@med.umich.edu.
  • Bouma S; Division of Pediatric Pulmonology, University of Michigan, Ann Arbor, Michigan, United States. Electronic address: sbouma@med.umich.edu.
  • Iwanicki C; Division of Pediatric Pulmonology, University of Michigan, Ann Arbor, Michigan, United States. Electronic address: coumoyer@med.umich.edu.
  • Karakoc F; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
  • Nasr SZ; Division of Pediatric Pulmonology, University of Michigan, Ann Arbor, Michigan, United States. Electronic address: snasr@med.umich.edu.
  • Karadag B; Marmara University School of Medicine, Division of Pediatric Pulmonology, Mimar Sinan Cad. No:10, Istanbul 34899, Turkey.
J Cyst Fibros ; 22(4): 710-714, 2023 07.
Article en En | MEDLINE | ID: mdl-37037703
BACKGROUND: A collaboration between the University of Michigan (U of M) Cystic Fibrosis Center (CFC) and Marmara University (MU) CFC was initiated to improve the health status of people with cystic fibrosis (pwCF) at MU through implementing Quality Improvement (QI) initiatives. The main aim was to improve lung function in children with FEV1pp <80. The secondary aim was to assess the changes in health related quality of life. METHODS: Included in the project were pwCF who received cystic fibrosis (CF) care at the MU CFC and were 6-18 years of age with an FEV1pp <80. Flow charts were created and a standardized CF care algorithm was implemented. Weekly case review were done to develop individualized treatment plans. Appropriate intervention was applied and patient data were assessed at baseline, 3, 6, 9 and 12 months. The Cystic Fibrosis Revised Questionnaire (CFQ-R) was completed. RESULTS: 55 pwCF were included (mean age:11.8 ± 3.3 years). Mean FEV1pp (SD) at baseline, 6 and 12 month was 63.7 (14.6), 66.9 (16.6), 70.4 (19.2), respectively, with a relative increase of 5.0% in 6 months (p:0.002) and 10.5% in 12 months compared to baseline (p<0.001). Physical functioning, eating problems and respiratory symptoms domains of the CFQ-R questionnaire were improved at the end of the one year for 6-13 (p = 0.024, p = 0.009, p = 0.002) and 13-18 year olds (p = 0.013, p = 0.002, p = 0.038). CONCLUSION: There was significant improvement in pwCF with FEV1<80%pp after implementing this QI project. The processes and assessments used can be adopted by other low-middle income countries to improve similar measures.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fibrosis Quística Tipo de estudio: Diagnostic_studies / Prognostic_studies Aspecto: Patient_preference Límite: Adolescent / Child / Humans Idioma: En Revista: J Cyst Fibros Año: 2023 Tipo del documento: Article Pais de publicación: Países Bajos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fibrosis Quística Tipo de estudio: Diagnostic_studies / Prognostic_studies Aspecto: Patient_preference Límite: Adolescent / Child / Humans Idioma: En Revista: J Cyst Fibros Año: 2023 Tipo del documento: Article Pais de publicación: Países Bajos