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Best practice recommendations for speech-language pathology in children with neuromuscular disorders: A Delphi-based consensus study.
Kooi-van Es, Mieke; Erasmus, Corrie E; Voet, Nicoline B M; van den Engel-Hoek, Lenie; van der Wees, Philip J.
Afiliación
  • Kooi-van Es M; Rehabilitation Centre Klimmendaal, Arnhem, The Netherlands.
  • Erasmus CE; Department of Rehabilitation, Radboud University Medical Centre, Radboud Institute for Health Sciences, Nijmegen, The Netherlands.
  • Voet NBM; Radboud, University Medical Centre, Department of Pediatric Neurology, Amalia Children's Hospital, Nijmegen, The Netherlands.
  • van den Engel-Hoek L; Rehabilitation Centre Klimmendaal, Arnhem, The Netherlands.
  • van der Wees PJ; Department of Rehabilitation, Radboud University Medical Centre, Nijmegen, The Netherlands, and.
Int J Speech Lang Pathol ; 26(1): 45-58, 2024 Feb.
Article en En | MEDLINE | ID: mdl-36896919
PURPOSE: Speech-language pathology (SLP) is considered an essential intervention due to the high prevalence of dysphagia and dysarthria in paediatric neuromuscular disorders (pNMD). Evidence-based guidelines for SLP in pNMD are missing and children could be deprived the best of care. This study aimed to achieve consensus and present best practice recommendations on SLP intervention in pNMD. METHOD: A modified Delphi technique was used with a panel of experienced Dutch speech-language pathologists. In two online survey rounds and a face-to-face consensus meeting, the SLP experts proposed intervention items for cases of four types of pNMD (congenital myopathy, Duchenne muscular dystrophy, myotonic dystrophy type 1, and spinal muscular atrophy type 2), covering symptoms of dysphagia, dysarthria, drooling, and oral hygiene problems. They rated the level of agreement. RESULT: Intervention items that achieved consensus were incorporated into best practice recommendations. These recommendations cover six core intervention components (wait and see, explanation and advice, training and treatment, aids and adjustments, referral to other disciplines, and monitoring) suitable for the described symptoms. CONCLUSION: Insight into treatment options is essential to facilitate speech-language pathologists in clinical decision-making. The current study led to best practice recommendations for speech-language pathologists working within the field of pNMD.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Trastornos de Deglución / Patología del Habla y Lenguaje Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research / Risk_factors_studies Límite: Child / Humans Idioma: En Revista: Int J Speech Lang Pathol Asunto de la revista: PATOLOGIA DA FALA E LINGUAGEM Año: 2024 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Trastornos de Deglución / Patología del Habla y Lenguaje Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research / Risk_factors_studies Límite: Child / Humans Idioma: En Revista: Int J Speech Lang Pathol Asunto de la revista: PATOLOGIA DA FALA E LINGUAGEM Año: 2024 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido