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Being a Parent of Children with Disabilities during the COVID-19 Pandemic: Multi-Method Study of Health, Social Life, and Occupational Situation.
Fortin-Bédard, Noémie; Ladry, Naomie-Jade; Routhier, François; Lettre, Josiane; Bouchard, David; Ouellet, Béatrice; Grandisson, Marie; Best, Krista L; Bussières, Ève-Line; Baron, Marie; LeBlanc, Annie; Lamontagne, Marie-Eve.
Afiliación
  • Fortin-Bédard N; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • Ladry NJ; Department of Rehabilitation, Université Laval, Quebec, QC G1V 0A6, Canada.
  • Routhier F; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • Lettre J; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • Bouchard D; Department of Rehabilitation, Université Laval, Quebec, QC G1V 0A6, Canada.
  • Ouellet B; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • Grandisson M; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • Best KL; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • Bussières ÈL; Department of Rehabilitation, Université Laval, Quebec, QC G1V 0A6, Canada.
  • Baron M; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
  • LeBlanc A; Department of Rehabilitation, Université Laval, Quebec, QC G1V 0A6, Canada.
  • Lamontagne ME; Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre Intégré Universitaire de Santé et de Services Sociaux de la Capitale-Nationale, Quebec, QC G1C 3S2, Canada.
Article en En | MEDLINE | ID: mdl-36833804
Parents of children with disabilities face challenges in their daily lives, but little is known about their experience of the COVID-19 pandemic. The objective of the study was to explore the experiences of parents of children with disabilities during the COVID-19 pandemic in Quebec, Canada. Forty parents of children with disabilities from Quebec, Canada (mean [SD] age: 41.2 [6.7]; 93% women) were selected from the Ma Vie et la pandémie (MAVIPAN) study. All 40 parents completed the MAVIPAN online questionnaires including the Depression, Anxiety and Stress Scale (DASS-21), Warwick-Edinburgh Mental Wellbeing short 7-item scale (WEMWBS), Social Provisions Scale-10 item (SPS-10), and the UCLA Loneliness Scale (UCLA-LS). A multi-method analysis was used to summarize questionnaires and thematically explore parents' experiences. Parents reported deterioration in their mental (50.0%) and physical (27.5%) health, with moderate levels of depression, stress, and anxiety, yet moderately positive well-being. Additional experiences included reduction in available supports (71.4%) and feelings of social isolation (51.4%). Our results highlighted reduced mental and physical health, limited and modified access to certain services, and reduction of social supports for some parents of children with disabilities. Health professionals, policymakers, and governments should be mindful of these challenges experienced by parents of children with disabilities.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Niños con Discapacidad / COVID-19 Límite: Adult / Child / Female / Humans / Male Idioma: En Revista: Int J Environ Res Public Health Año: 2023 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Suiza

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Niños con Discapacidad / COVID-19 Límite: Adult / Child / Female / Humans / Male Idioma: En Revista: Int J Environ Res Public Health Año: 2023 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Suiza