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Health Policies for Rare Disease Patients: A Scoping Review.
Lopes-Júnior, Luís Carlos; Ferraz, Victor Evangelista Faria; Lima, Regina Aparecida Garcia; Schuab, Sara Isabel Pimentel Carvalho; Pessanha, Raphael Manhães; Luz, Geisa Santos; Laignier, Mariana Rabello; Nunes, Karolini Zuqui; Lopes, Andressa Bolsoni; Grassi, Jonathan; Moreira, Juliana Almeida; Jardim, Fabrine Aguilar; Leite, Franciéle Marabotti Costa; Freitas, Paula de Souza Silva; Bertolini, Silvia Regina.
Afiliación
  • Lopes-Júnior LC; Health Sciences Center, Graduate Program in Public Health, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Ferraz VEF; Ribeirão Preto Medical School, University of São Paulo (USP), Ribeirão Preto 14049-900, SP, Brazil.
  • Lima RAG; Ribeirão Preto College of Nursing (USP), University of São Paulo, Ribeirão Preto 14040-902, SP, Brazil.
  • Schuab SIPC; Nursing Department, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Pessanha RM; Health Sciences Center, Graduate Program in Public Health, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Luz GS; Hospital de Clínicas da Faculdade de Medicina de Marília (HCFAMEMA), Marília 17519-080, SP, Brazil.
  • Laignier MR; Nursing Department, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Nunes KZ; Department of Integrated Health Education, Graduate Program in Nutrition and Health, Federal University of Espírito Santo (UFES), Vitoria 29043-213, ES, Brazil.
  • Lopes AB; Department of Integrated Health Education, Graduate Program in Nutrition and Health, Federal University of Espírito Santo (UFES), Vitoria 29043-213, ES, Brazil.
  • Grassi J; Health Sciences Center, Graduate Program in Public Health, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Moreira JA; Department of Integrated Health Education, Graduate Program in Nutrition and Health, Federal University of Espírito Santo (UFES), Vitoria 29043-213, ES, Brazil.
  • Jardim FA; Ribeirão Preto College of Nursing (USP), University of São Paulo, Ribeirão Preto 14040-902, SP, Brazil.
  • Leite FMC; Health Sciences Center, Graduate Program in Public Health, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Freitas PSS; Nursing Department, Federal University of Espírito Santo (UFES), Vitoria 29047-105, ES, Brazil.
  • Bertolini SR; Department of Management and Health Care, Federal University of São Paulo (UNIFESP), São Paulo 04021-001, SP, Brazil.
Int J Environ Res Public Health ; 19(22)2022 11 17.
Article en En | MEDLINE | ID: mdl-36429893
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedades Raras / Política de Salud Tipo de estudio: Prognostic_studies / Systematic_reviews Límite: Humans País/Región como asunto: America do sul / Brasil Idioma: En Revista: Int J Environ Res Public Health Año: 2022 Tipo del documento: Article País de afiliación: Brasil Pais de publicación: Suiza
Texto completo
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XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedades Raras / Política de Salud Tipo de estudio: Prognostic_studies / Systematic_reviews Límite: Humans País/Región como asunto: America do sul / Brasil Idioma: En Revista: Int J Environ Res Public Health Año: 2022 Tipo del documento: Article País de afiliación: Brasil Pais de publicación: Suiza