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Patient Acceptability of Home Monitoring for Neovascular Age-Related Macular Degeneration Reactivation: A Qualitative Study.
O'Connor, Seán R; Treanor, Charlene; Ward, Elizabeth; Wickens, Robin A; O'Connell, Abby; Culliford, Lucy A; Rogers, Chris A; Gidman, Eleanor A; Peto, Tunde; Knox, Paul C; Burton, Benjamin J L; Lotery, Andrew J; Sivaprasad, Sobha; Reeves, Barnaby C; Hogg, Ruth E; Donnelly, Michael.
Afiliación
  • O'Connor SR; School of Psychology, Queen's University of Belfast, Belfast BT7 1NN, UK.
  • Treanor C; Centre for Public Health, Queen's University of Belfast, Belfast BT12 6BA, UK.
  • Ward E; Bristol Trials Centre (CTEU), University of Bristol, Bristol Royal Infirmary, Bristol BS2 8HW, UK.
  • Wickens RA; Bristol Trials Centre (CTEU), University of Bristol, Bristol Royal Infirmary, Bristol BS2 8HW, UK.
  • O'Connell A; Southampton Clinical Trials Unit, University of Southampton, University Road, Southampton SO17 1BJ, UK.
  • Culliford LA; Exeter Clinical Trials Unit (EXECTU), University of Exeter, St. Lukes Campus, Exeter EX1 2LT, UK.
  • Rogers CA; Bristol Trials Centre (CTEU), University of Bristol, Bristol Royal Infirmary, Bristol BS2 8HW, UK.
  • Gidman EA; Bristol Trials Centre (CTEU), University of Bristol, Bristol Royal Infirmary, Bristol BS2 8HW, UK.
  • Peto T; Bristol Trials Centre (CTEU), University of Bristol, Bristol Royal Infirmary, Bristol BS2 8HW, UK.
  • Knox PC; Centre for Public Health, Queen's University of Belfast, Belfast BT12 6BA, UK.
  • Burton BJL; Department of Eye and Vision Science, University of Liverpool, Liverpool L7 8TX, UK.
  • Lotery AJ; James Paget University Hospitals NHS Foundation Trust, Norfolk NR31 6LA, UK.
  • Sivaprasad S; Department of Clinical and Experimental Sciences, Faculty of Medicine, University of Southampton, Southampton SO16 6YD, UK.
  • Reeves BC; NIHR Moorfields Biomedical Research Centre, Moorfields Eye Hospital NHS Foundation Trust, London EC1V 2PD, UK.
  • Hogg RE; Bristol Trials Centre (CTEU), University of Bristol, Bristol Royal Infirmary, Bristol BS2 8HW, UK.
  • Donnelly M; Centre for Public Health, Queen's University of Belfast, Belfast BT12 6BA, UK.
  • Monarch Study Group; Centre for Public Health, Queen's University of Belfast, Belfast BT12 6BA, UK.
Int J Environ Res Public Health ; 19(20)2022 10 21.
Article en En | MEDLINE | ID: mdl-36294292
Neovascular age-related macular degeneration (nAMD) is a chronic, progressive condition and the commonest cause of visual disability in older adults. This study formed part of a diagnostic test accuracy study to quantify the ability of three index home monitoring (HM) tests (one paper-based and two digital tests) to identify reactivation in nAMD. The aim of this qualitative research was to investigate patients' or participants' views about acceptability and explore adherence to weekly HM. Semi-structured interviews were held with 78/297 participants (26%), with close family members (n = 11) and with healthcare professionals involved in training participants in HM procedures (n = 9) (n = 98 in total). A directed thematic analytical approach was applied to the data using a deductive and inductive coding framework informed by theories of technology acceptance. Five themes emerged related to: 1. The role of HM; 2. Suitability of procedures and instruments; 3. Experience of HM; 4. Feasibility of HM in usual practice; and 5. Impediments to patient acceptability of HM. Various factors influenced acceptability including a patient's understanding about the purpose of monitoring. While initial training and ongoing support were regarded as essential for overcoming unfamiliarity with use of digital technology, patients viewed HM as relatively straightforward and non-burdensome. There is a need for further research about how use of performance feedback, level of support and nature of tailoring might facilitate further the implementation of routinely conducted HM. Home monitoring was acceptable to patients and they recognised its potential to reduce clinic visits during non-active treatment phases. Findings have implications for implementation of digital HM in the care of older people with nAMD and other long-term conditions.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Personal de Salud / Degeneración Macular Tipo de estudio: Diagnostic_studies / Prognostic_studies / Qualitative_research Límite: Aged / Humans Idioma: En Revista: Int J Environ Res Public Health Año: 2022 Tipo del documento: Article Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Personal de Salud / Degeneración Macular Tipo de estudio: Diagnostic_studies / Prognostic_studies / Qualitative_research Límite: Aged / Humans Idioma: En Revista: Int J Environ Res Public Health Año: 2022 Tipo del documento: Article Pais de publicación: Suiza