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Microcephaly is associated with impaired educational development in children with congenital heart disease.
Pfitzer, Constanze; Sievers, Laura K; Hütter, Alina; Khaliq, Hashim-Abdul; Poryo, Martin; Berger, Felix; Bauer, Ulrike M M; Helm, Paul C; Schmitt, Katharina R L.
Afiliación
  • Pfitzer C; Department of Congenital Heart Disease/Pediatric Cardiology, Deutsches Herzzentrum Berlin, Berlin, Germany.
  • Sievers LK; Berlin Institute of Health (BIH), Berlin, Germany.
  • Hütter A; DZHK (German Centre for Cardiovascular Research), Partner Site Berlin, Berlin, Germany.
  • Khaliq HA; Department of Internal Medicine I., Christian-Albrechts-University and University Hospital Schleswig-Holstein, Kiel, Germany.
  • Poryo M; Department of Congenital Heart Disease/Pediatric Cardiology, Deutsches Herzzentrum Berlin, Berlin, Germany.
  • Berger F; Department of Pediatric Cardiology, Saarland University Medical Center, Homburg, Germany.
  • Bauer UMM; Department of Pediatric Cardiology, Saarland University Medical Center, Homburg, Germany.
  • Helm PC; Department of Congenital Heart Disease/Pediatric Cardiology, Deutsches Herzzentrum Berlin, Berlin, Germany.
  • Schmitt KRL; DZHK (German Centre for Cardiovascular Research), Partner Site Berlin, Berlin, Germany.
Front Cardiovasc Med ; 9: 917507, 2022.
Article en En | MEDLINE | ID: mdl-36277771
Objectives: This study aims to evaluate the school careers of patients with congenital heart disease (CHD) and microcephaly. Methods: An exploratory online survey was conducted on patients from a previous study on somatic development in children with CHD in 2018 (n = 2818). A total of 750 patients participated in the online survey (26.6%). This publication focuses on 91 patients (12.1%) diagnosed with CHD and microcephaly who participated in the new online survey. Results: Microcephaly was significantly associated with CHD severity (p < 0.001). Microcephalic patients suffered from psychiatric comorbidity two times as often (67.0%) as non-microcephalic patients (29.8%). In particular, the percentage of patients with developmental delay, intellectual debility, social disability, learning disorder, or language disorder was significantly increased in microcephalic CHD patients (p < 0.001). A total of 85.7% of microcephalic patients and 47.6% of non-microcephalic patients received early interventions to foster their development. The school enrollment of both groups was similar at approximately six years of age. However, 89.9% of non-microcephalic but only 51.6% of microcephalic patients were enrolled in a regular elementary school. Regarding secondary school, only half as many microcephalic patients (14.3%) went to grammar school, while the proportion of pupils at special schools was eight times higher. Supportive interventions, e.g., for specific learning disabilities, were used by 52.7% of microcephalic patients and 21.6% of non-microcephalic patients. Conclusion: Patients with CHD and microcephaly are at high risk for impaired educational development. Early identification should alert clinicians to provide targeted interventions to optimize the developmental potential.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Risk_factors_studies Idioma: En Revista: Front Cardiovasc Med Año: 2022 Tipo del documento: Article País de afiliación: Alemania Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Risk_factors_studies Idioma: En Revista: Front Cardiovasc Med Año: 2022 Tipo del documento: Article País de afiliación: Alemania Pais de publicación: Suiza