Your browser doesn't support javascript.
loading
Prevalence of unmet pain and symptom management needs in adults with cystic fibrosis.
Dubin, Ethan; Lowers, Jane; Dellon, Elisabeth P; Hempstead, Sarah; Faro, Albert; Tallarico, Erin; Fitzpatrick, Anne; Hunt, William R; Kavalieratos, Dio.
Afiliación
  • Dubin E; Rollins School of Public Health, Emory University, Atlanta, GA, United States; Division of Palliative Medicine, Department of Family and Preventive Medicine, Emory University, Atlanta, GA, United States.
  • Lowers J; Division of Palliative Medicine, Department of Family and Preventive Medicine, Emory University, Atlanta, GA, United States.
  • Dellon EP; Department of Pediatrics, UNC Chapel Hill, Chapel Hill, NC, United States.
  • Hempstead S; Cystic Fibrosis Foundation, Bethesda, MD, United States.
  • Faro A; Cystic Fibrosis Foundation, Bethesda, MD, United States.
  • Tallarico E; Cystic Fibrosis Foundation, Bethesda, MD, United States.
  • Fitzpatrick A; Department of Pediatrics, Emory University, Atlanta, GA, United States.
  • Hunt WR; Division of Pulmonary, Allergy, Critical Care, and Sleep Medicine, Department of Medicine, Emory University, Atlanta, GA, United States.
  • Kavalieratos D; Rollins School of Public Health, Emory University, Atlanta, GA, United States; Division of Palliative Medicine, Department of Family and Preventive Medicine, Emory University, Atlanta, GA, United States; Department of Pediatrics, Emory University, Atlanta, GA, United States. Electronic address: d.ka
J Cyst Fibros ; 22(2): 352-355, 2023 03.
Article en En | MEDLINE | ID: mdl-35973901
BACKGROUND: Although people living with CF (PLwCF) commonly report pain and other symptoms, little is known regarding their experiences of living with and accessing treatment for burdensome symptoms. METHODS: PLwCF completed online questionnaires assessing symptom prevalence and distress and were also asked about experiences accessing pain and symptom treatment, using both closed-ended and free-text entries. RESULTS: Pain was the most prevalent symptom experienced among the 55 participants (76%) and the symptom that most commonly caused distress (64%). PLwCF not on CFTR modulator therapy were likelier to endorse pain as distressing (p = 0.007). Respondents expressed that their pain was commonly underrecognized and undermanaged, they desired a multi-modal approach to treatment, and noted concerns about disease progression affecting their symptom management options. CONCLUSIONS: Our study suggests that PLwCF often have unmet symptom management needs that may impair quality of life.
Asunto(s)
Palabras clave
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fibrosis Quística Tipo de estudio: Diagnostic_studies / Prevalence_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Adult / Humans Idioma: En Revista: J Cyst Fibros Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Países Bajos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fibrosis Quística Tipo de estudio: Diagnostic_studies / Prevalence_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Adult / Humans Idioma: En Revista: J Cyst Fibros Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Países Bajos