An initial investigation of using smartphone-enabled micro-temporal data collection to increase acceptability, feasibility, and validity of research on cancer caregiving.

Bouchard, Elizabeth G; Collins, R Lorraine; Vincent, Paula C; Patel, Hital; Sahler, Olle Jane Z; McCarty, Christopher; Prince, Mark A; Kelly, Kara M

Bouchard, Elizabeth G; Collins, R Lorraine; Vincent, Paula C; Patel, Hital; Sahler, Olle Jane Z; McCarty, Christopher; Prince, Mark A; Kelly, Kara M.

Afiliación

Bouchard EG; Department of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.
Collins RL; Department of Community Health and Health Behavior, University at Buffalo, Buffalo, New York, USA.
Vincent PC; Department of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.
Patel H; Department of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.
Sahler OJZ; Department of Pediatrics, University of Rochester, Rochester, New York, USA.
McCarty C; Department of Anthropology, University of Florida, Gainesville, Florida, USA.
Prince MA; Department of Psychology, Colorado State University, Fort Collins, Colorado, USA.
Kelly KM; Department of Pediatric Oncology, Roswell Park Comprehensive Cancer Center, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.

Pediatr Blood Cancer ; 69(10): e29886, 2022 10.

Article en En | MEDLINE | ID: mdl-35869890

RESUMEN

PURPOSE: Smartphone-enabled micro-temporal data collection has potential to increase reliability, validity, and feasibility of participant-reported data and is a promising strategy for pediatric oncology supportive care and quality-of-life research. Given the demands of pediatric cancer caregiving, we sought to understand the feasibility and acceptability of smartphone data collection that included short surveys administered daily for 14 days via text message link. METHODS: We recruited pediatric cancer caregivers, whose children (ages 0-18 years) were on active treatment, to complete a 14-day daily survey study via smartphone. We implemented our study procedures and examined feasibility through study enrollment rates, reasons for refusal, retention rates, number of reminders and number of completed surveys. We examined acceptability using caregiver ratings of survey length, burden, and ease of completion on a smartphone. RESULTS: We recruited (N = 75) caregivers to the study and had an 84% enrollment rate. Reasons for declining participation included passive refusal (n = 13) and too busy (n = 1). The participant retention rate was 100% and compliance with daily survey completion was 99%. Most surveys were completed following two prompts and took participants 5 minutes or less to complete. Caregivers rated the surveys as easy to complete, low burden, and just right in length. CONCLUSION: A daily self-report, using a brief (≤5 minutes) survey administered on a smartphone via text message prompt, is a feasible and acceptable method. Future research should extend these findings to understand the generalizability across pediatric cancer caregiving contexts.

Asunto(s)

Neoplasias; Teléfono Inteligente; Adolescente; Niño; Preescolar; Estudios de Factibilidad; Humanos; Lactante; Recién Nacido; Neoplasias/terapia; Reproducibilidad de los Resultados; Encuestas y Cuestionarios

Palabras clave

behavioral studies; outcomes research; pediatric oncology; psychosocial; quality of life

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Teléfono Inteligente / Neoplasias Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Humans / Infant / Newborn Idioma: En Revista: Pediatr Blood Cancer Asunto de la revista: HEMATOLOGIA / NEOPLASIAS / PEDIATRIA Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos

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