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Impact of the COVID-19 pandemic on daily life, mood, and behavior of adults with Down syndrome.
Hartley, Sigan L; Fleming, Victoria; Piro-Gambetti, Brianna; Cohen, Annie; Ances, Beau M; Yassa, Michael A; Brickman, Adam M; Handen, Benjamin L; Head, Elizabeth; Mapstone, Mark; Christian, Bradley T; Lott, Ira T; Doran, Eric; Zaman, Shahid; Krinsky-McHale, Sharon; Schmitt, Fredrick A; Hom, Christy; Schupf, Nicole.
Afiliación
  • Hartley SL; Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI 53706, USA; School of Human Ecology, University of Wisconsin-Madison, 1300 Linden Dr, Madison, WI 53706, USA. Electronic address: slhartley@wisc.edu.
  • Fleming V; Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI 53706, USA; School of Human Ecology, University of Wisconsin-Madison, 1300 Linden Dr, Madison, WI 53706, USA.
  • Piro-Gambetti B; Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI 53706, USA; School of Human Ecology, University of Wisconsin-Madison, 1300 Linden Dr, Madison, WI 53706, USA.
  • Cohen A; University of Pittsburgh, Department of Psychiatry, 3811 O'Hara Street, Pittsburgh, PA, 15213, USA.
  • Ances BM; Washington University St. Louis, Department of Neurology, 660 Euclid Ave, St. Louis, MO 631100, USA.
  • Yassa MA; University of California, Irvine, Neurobiology and Behavior, 213 Qureshey Research Lab, Irvine, CA 92697, USA.
  • Brickman AM; Columbia University, Department of Neurology, 710 W 168th Street, New York, NY 10033, USA.
  • Handen BL; University of Pittsburgh, Department of Psychiatry, 3811 O'Hara Street, Pittsburgh, PA, 15213, USA.
  • Head E; Univeristy of California, Irvine, Department of Pathology and Laboratory medicine, 1111Gillespie Neuroscience Research Facility, Irvine, CA 92697, USA.
  • Mapstone M; University of California, Irvine, Clinical Neurology, 839 Health Sciences road, Irvine, CA, 92697, USA.
  • Christian BT; Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI 53706, USA.
  • Lott IT; University of California, Irvine, Department of Psychiatry and Human Behavior, Irvine, CA 92697, USA.
  • Doran E; University of California Irvine, Department of Pediatrics, Bldg 2 34d Floor Rt81, 101 The City Drive, Orange, CA 92668, USA.
  • Zaman S; Cambridge Intellectual & Developmental Disabilities Research Group (CIDDRG), University of Cambridge, Department of Psychiatry, Addenbrooke's Hospital, Box 189, Level E4, Hills Road, Cambridge, CB2 0QQ, UK; Cambridgeshire & Peterborough NHS Foundation Trust (CPFT), Elizabeth House, Fulbourn
  • Krinsky-McHale S; New York Institute for Basic Research in Developmental Disabilities, Department of Psychology, 1050 Forest Hill Rd, Staten Island, NY 10314, USA.
  • Schmitt FA; University of Kentucky, Department of Neurosurgery, 740 S. Limestone, Lexington, KY 40536, USA.
  • Hom C; University of California Irvine, Department of Pediatrics, Bldg 2 34d Floor Rt81, 101 The City Drive, Orange, CA 92668, USA.
  • Schupf N; Columbia University, Department of Neurology, 710 W 168th Street, New York, NY 10033, USA.
Disabil Health J ; 15(3): 101278, 2022 07.
Article en En | MEDLINE | ID: mdl-35256308
BACKGROUND: The Down syndrome population has been disproportionately affected by Coronavirus 2019 (COVID-19) in terms of experiencing severe illness and death. Societal efforts to curb the spread of COVID-19 may also have taken a heavy toll on the daily lives of individuals with Down syndrome. OBJECTIVE/HYPOTHESIS: The goal of the study was to understand how the COVID-19 pandemic has altered daily life (including residence, employment, and participation in adult disability day programs) and influenced the mood and behavior of adults with Down syndrome. METHODS: Between September 2020 and February 2021, caregivers of 171 adults with Down syndrome (aged 22-66 years) located across the United States and in the United Kingdom enrolled in the Alzheimer's Biomarker Research Consortium on Down Syndrome (ABC-DS) completed a survey. RESULTS: The residence of 17% of individuals was altered, and 89% of those who had been employed stopped working during the pandemic. One-third (33%) of individuals were reported to be more irritable or easily angered, 52% were reported to be more anxious, and 41% were reported to be more sad/depressed/unhappy relative to prepandemic. The majority of changes in mood and behavior were of modest severity. CONCLUSIONS: The COVID-19 pandemic has had widespread effects on the daily life and mood and behavior of adults with Down syndrome. In the short term, caregivers and providers should be prepared to help adults with Down syndrome with changes in daily routines, residence, employment, or adult disability day programs as society shifts away from COVID-19 safety protocols.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Síndrome de Down / Personas con Discapacidad / COVID-19 Límite: Adult / Humans País/Región como asunto: America do norte Idioma: En Revista: Disabil Health J Asunto de la revista: REABILITACAO / SAUDE PUBLICA / SERVICOS DE SAUDE Año: 2022 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Síndrome de Down / Personas con Discapacidad / COVID-19 Límite: Adult / Humans País/Región como asunto: America do norte Idioma: En Revista: Disabil Health J Asunto de la revista: REABILITACAO / SAUDE PUBLICA / SERVICOS DE SAUDE Año: 2022 Tipo del documento: Article Pais de publicación: Estados Unidos