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Dietary treatment in Dutch children with phenylketonuria: An inventory of associated social restrictions and eating problems.
Haitjema, Sietske; Lubout, Charlotte M A; Abeln, David; Bruijn-van der Veen, Marlies de; MacDonald, Anita; Wolffenbuttel, Bruce H R; van Spronsen, Francjan J.
Afiliación
  • Haitjema S; Department of Pediatrics, Department of Metabolic Disorders, Beatrix Children's Hospital, University Medical Center Groningen, Groningen, the Netherlands.
  • Lubout CMA; Department of Pediatrics, Department of Metabolic Disorders, Beatrix Children's Hospital, University Medical Center Groningen, Groningen, the Netherlands. Electronic address: c.m.a.lubout@umcg.nl.
  • Abeln D; President of the Dutch PKU Association, the Netherlands.
  • Bruijn-van der Veen M; Department of Psychology, University Medical Center Groningen, Groningen, the Netherlands.
  • MacDonald A; Department of Dietetics, Birmingham Children's Hospital, Birmingham, The United Kingdom.
  • Wolffenbuttel BHR; Department of Endocrinology, University Medical Center Groningen, Groningen, the Netherlands.
  • van Spronsen FJ; Department of Pediatrics, Department of Metabolic Disorders, Beatrix Children's Hospital, University Medical Center Groningen, Groningen, the Netherlands.
Nutrition ; 97: 111576, 2022 05.
Article en En | MEDLINE | ID: mdl-35248849
OBJECTIVES: Dietary treatment in phenylketonuria (PKU) is known to cause eating problems, but knowledge of both prevalence and magnitude, especially for social restrictions, is scarce. Our aim was to evaluate the social restrictions and eating problems that children with PKU and their caregivers experience with dietary treatment. METHODS: A web-based questionnaire, based on the Behavioral Pediatrics Feeding Assessment Scale with additional PKU-specific questions, was developed in close collaboration with and distributed by the Dutch PKU Association, which sent an e-mail to its members containing a link to the questionnaire. The questionnaire was completed by caregivers of children with PKU in the Netherlands and caregivers of age-matched children without PKU. Data were analyzed with the Kruskal-Wallis and Mann-Whitney U test using SPSS. RESULTS: Compared with caregivers of children in the control group (ages 1-16 y; n = 50), caregivers of children with PKU (ages 1-16 y; n = 57) reported more difficulty in offering food variety, experienced more stress when eating an evening meal outside the home and during vacation, and were stricter about (accidental) spilling of food during dinner by the child (P < 0.05). They also reported to being angrier, more frustrated, and more anxious when feeding their child, and they more often felt that their child's eating pattern had a negative influence on the child's general health (P < 0.05). CONCLUSION: This pilot study provides further evidence that restriction of social activities and eating problems associated with dietary restrictions is more common in children with PKU, and warrants awareness on this topic among professionals working with these children.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fenilcetonurias Tipo de estudio: Risk_factors_studies Límite: Adolescent / Child / Child, preschool / Humans / Infant Idioma: En Revista: Nutrition Asunto de la revista: CIENCIAS DA NUTRICAO Año: 2022 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fenilcetonurias Tipo de estudio: Risk_factors_studies Límite: Adolescent / Child / Child, preschool / Humans / Infant Idioma: En Revista: Nutrition Asunto de la revista: CIENCIAS DA NUTRICAO Año: 2022 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Estados Unidos