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Lessons Learned Recruiting and Retaining Pregnant and Postpartum Individuals in Digital Trials: Viewpoint.
Parks, Amanda M; Duffecy, Jennifer; McCabe, Jennifer E; Blankstein Breman, Rachel; Milgrom, Jeannette; Hirshler, Yafit; Gemmill, Alan W; Segre, Lisa S; Felder, Jennifer N; Uscher-Pines, Lori.
Afiliación
  • Parks AM; Department of Psychology, Virginia Commonwealth University, Richmond, VA, United States.
  • Duffecy J; Department of Psychiatry, College of Medicine, University of Illinois at Chicago, Chicago, IL, United States.
  • McCabe JE; Department of Psychology, Western Washington University, Bellingham, WA, United States.
  • Blankstein Breman R; School of Nursing, University of Maryland, Baltimore, MD, United States.
  • Milgrom J; Parent-Infant Research Institute, Austin Health, University of Melbourne, Melbourne, Australia.
  • Hirshler Y; Parent-Infant Research Institute, Austin Health, University of Melbourne, Melbourne, Australia.
  • Gemmill AW; Parent-Infant Research Institute, Austin Health, University of Melbourne, Melbourne, Australia.
  • Segre LS; College of Nursing, University of Iowa, Iowa City, IA, United States.
  • Felder JN; Osher Center for Integrative Health, University of California, San Francisco, CA, United States.
  • Uscher-Pines L; Department of Psychiatry and Behavioral Sciences, University of California, San Francisco, CA, United States.
JMIR Pediatr Parent ; 5(2): e35320, 2022 Apr 20.
Article en En | MEDLINE | ID: mdl-35107422
In an increasingly connected world and in the midst of a global pandemic, digital trials offer numerous advantages over traditional trials that rely on physical study sites. Digital trials have the potential to improve access to research and clinical treatments for the most vulnerable and minoritized, including pregnant and postpartum individuals. However, digital trials are underutilized in maternal and child health research, and there is limited evidence to inform the design and conduct of digital trials. Our research collaborative, consisting of 5 research teams in the U.S. and Australia, aimed to address this gap. We collaborated to share lessons learned from our experiences recruiting and retaining pregnant and postpartum individuals in digital trials of social and behavioral interventions. We first discuss the promise of digital trials in improving participation in research during the perinatal period, as well as the unique challenges they pose. Second, we present lessons learned from 12 completed and ongoing digital trials that have used platforms such as Ovia, Facebook, and Instagram for recruitment. Our trials evaluated interventions for breastfeeding, prenatal and postpartum depression, insomnia, decision making, and chronic pain. We focus on challenges and lessons learned in 3 key areas: (1) rapid recruitment of large samples with a diversity of minoritized identities, (2) retention of study participants in longitudinal studies, and (3) prevention of fraudulent enrollment. We offer concrete strategies that we pilot-tested to address these challenges. Strategies presented in this commentary can be incorporated, as well as formally evaluated, in future studies.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Observational_studies / Prognostic_studies Idioma: En Revista: JMIR Pediatr Parent Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Canadá
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Observational_studies / Prognostic_studies Idioma: En Revista: JMIR Pediatr Parent Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Canadá