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The European Rare Disease Network for HHT Frameworks for management of hereditary haemorrhagic telangiectasia in general and speciality care.
Shovlin, C L; Buscarini, E; Sabbà, C; Mager, H J; Kjeldsen, A D; Pagella, F; Sure, U; Ugolini, S; Torring, P M; Suppressa, P; Rennie, C; Post, M C; Patel, M C; Nielsen, T H; Manfredi, G; Lenato, G M; Lefroy, D; Kariholu, U; Jones, B; Fialla, A D; Eker, O F; Dupuis, O; Droege, F; Coote, N; Boccardi, E; Alsafi, A; Alicante, S; Dupuis-Girod, S.
Afiliación
  • Shovlin CL; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK; National Heart and Lung Institute, Imperial College London, UK. Electronic address: c.shovlin@imperial.ac.uk.
  • Buscarini E; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy. Electronic address: elisabetta.buscarini@asst-crema.it.
  • Sabbà C; VASCERN HHT Reference Centre, Centro Sovraziendale Malattie Rare, "Frugoni" Internal Medicine Unit, University of Bari "A. Moro", Italy. Electronic address: carlo.sabba@uniba.it.
  • Mager HJ; VASCERN HHT Reference Centre, St Antonius Ziekenhuis, Nieuwegein, Netherlands. Electronic address: j.mager@antoniusziekenhuis.nl.
  • Kjeldsen AD; VASCERN HHT Reference Centre, Odense University Hospital, Syddansk Universitet, Odense, Denmark. Electronic address: anette.kjeldsen@rsyd.dk.
  • Pagella F; VASCERN HHT Reference Centre, University of Pavia, IRCCS Policlinico San Matteo Foundation, Pavia, Italy. Electronic address: tpagella@libero.it.
  • Sure U; VASCERN HHT Reference Centre, Essen University Hospital, Essen, Germany; Department of Neurosurgery and Spine Surgery, University Hospital Essen, Germany. Electronic address: Ulrich.Sure@uk-essen.de.
  • Ugolini S; VASCERN HHT Reference Centre, University of Pavia, IRCCS Policlinico San Matteo Foundation, Pavia, Italy. Electronic address: saraugolini5@gmail.com.
  • Torring PM; VASCERN HHT Reference Centre, Odense University Hospital, Syddansk Universitet, Odense, Denmark. Electronic address: Pernille.Toerring@rsyd.dk.
  • Suppressa P; VASCERN HHT Reference Centre, Centro Sovraziendale Malattie Rare, "Frugoni" Internal Medicine Unit, University of Bari "A. Moro", Italy. Electronic address: patrizia.suppressa@gmail.com.
  • Rennie C; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: c.rennie08@imperial.ac.uk.
  • Post MC; VASCERN HHT Reference Centre, St Antonius Ziekenhuis, Nieuwegein, Netherlands; Department of Cardiology, University Medical Center Utrecht, The Netherlands. Electronic address: m.post@antoniusziekenhuis.nl.
  • Patel MC; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: maneesh.patel@nhs.net.
  • Nielsen TH; VASCERN HHT Reference Centre, Odense University Hospital, Syddansk Universitet, Odense, Denmark. Electronic address: troels.nielsen@rsyd.dk.
  • Manfredi G; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy. Electronic address: guido.manfredi@asst-crema.it.
  • Lenato GM; VASCERN HHT Reference Centre, Centro Sovraziendale Malattie Rare, "Frugoni" Internal Medicine Unit, University of Bari "A. Moro", Italy. Electronic address: gmlenato75@libero.it.
  • Lefroy D; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: david.lefroy@nhs.net.
  • Kariholu U; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: ujwalkariholu@nhs.net.
  • Jones B; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: bryony.jones3@nhs.net.
  • Fialla AD; VASCERN HHT Reference Centre, Odense University Hospital, Syddansk Universitet, Odense, Denmark. Electronic address: annette.fialla@rsyd.dk.
  • Eker OF; VASCERN HHT Reference Centre, Hospices Civils de Lyon, Lyon, France. Electronic address: omer.eker@chu-lyon.fr.
  • Dupuis O; VASCERN HHT Reference Centre, Hospices Civils de Lyon, Lyon, France. Electronic address: olivier.dupuis@chu-lyon.fr.
  • Droege F; VASCERN HHT Reference Centre, Essen University Hospital, Essen, Germany; Department of ENT Surgery, University Hospital Essen, Germany. Electronic address: Freya.Droege@uk-essen.de.
  • Coote N; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: nicky.coote@nhs.net.
  • Boccardi E; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy; Niguarda Hospital, Milan, Italy. Electronic address: edoardopietro.boccardi@ospedaleniguarda.it.
  • Alsafi A; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK. Electronic address: a.alsafi@imperial.ac.uk.
  • Alicante S; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy. Electronic address: saverio_alicante@hotmail.com.
  • Dupuis-Girod S; VASCERN HHT Reference Centre, Hospices Civils de Lyon, Lyon, France. Electronic address: sophie.dupuis-girod@chu-lyon.fr.
Eur J Med Genet ; 65(1): 104370, 2022 Jan.
Article en En | MEDLINE | ID: mdl-34737116
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Telangiectasia Hemorrágica Hereditaria Tipo de estudio: Diagnostic_studies / Guideline Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Eur J Med Genet Asunto de la revista: GENETICA MEDICA Año: 2022 Tipo del documento: Article Pais de publicación: Países Bajos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Telangiectasia Hemorrágica Hereditaria Tipo de estudio: Diagnostic_studies / Guideline Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Eur J Med Genet Asunto de la revista: GENETICA MEDICA Año: 2022 Tipo del documento: Article Pais de publicación: Países Bajos