The burden of pharmacological treatment on health-related quality of life in people with a urea cycle disorder: a qualitative study.

Yeowell, Gillian; Burns, Danielle Stephanie; Fatoye, Francis

Yeowell, Gillian; Burns, Danielle Stephanie; Fatoye, Francis.

Afiliación

Yeowell G; Department of Health Professions, Manchester Metropolitan University, 53 Bonsall Street, Manchester, M15 6GX, UK. g.yeowell@mmu.ac.uk.
Burns DS; Department of Health Professions, Manchester Metropolitan University, 53 Bonsall Street, Manchester, M15 6GX, UK.
Fatoye F; Department of Health Professions, Manchester Metropolitan University, 53 Bonsall Street, Manchester, M15 6GX, UK.

J Patient Rep Outcomes ; 5(1): 110, 2021 Oct 25.

Article en En | MEDLINE | ID: mdl-34694515

Palabras clave

Glycerol phenylbutyrate; Pharmacological burden; Physical health; Psychological health; Quality of life; Social; Sodium benzoate; Sodium phenylbutyrate; Urea cycle disorders

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies / Qualitative_research Aspecto: Patient_preference Idioma: En Revista: J Patient Rep Outcomes Año: 2021 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Alemania

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