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Early clinical signs in lysosomal diseases.
Alkhzouz, Camelia; Miclea, Diana; Bucerzan, Simona; Lazea, Cecilia; Nascu, Ioana; Sido, Paula Grigorescu.
Afiliación
  • Alkhzouz C; Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.
  • Miclea D; Center of Expertise for Rare Diseases Lysosomal Diseases, Clinical Emergency Hospital for Children, Cluj, Romania.
  • Bucerzan S; Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.
  • Lazea C; Center of Expertise for Rare Diseases Lysosomal Diseases, Clinical Emergency Hospital for Children, Cluj, Romania.
  • Nascu I; Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.
  • Sido PG; Center of Expertise for Rare Diseases Lysosomal Diseases, Clinical Emergency Hospital for Children, Cluj, Romania.
Med Pharm Rep ; 94(Suppl No 1): S43-S46, 2021 Aug.
Article en En | MEDLINE | ID: mdl-34527909
BACKGROUND AND AIM: The lysosomal storage diseases are a group of monogenic diseases with multisystemic impairment and chronic progression induced by the deficiency of lysosomal acid hydrolases involved in the breakdown of various macromolecules. The accumulation occurs in the macrophages of the reticule-endothelial system and causes enlargement and functional impairment. The mainly involved organs are the brain, liver, spleen, bones, joints, airways, lungs, and heart. The aim of this study was to evaluate early symptoms, signs and the delay in the diagnosis of different lysosomal diseases. METHODS: The medical documentation of 188 patients with lysosomal storage disorders, aged 1-70 years, were analyzed. All these patients were specifically diagnosed, by enzyme and molecular assay. RESULTS: The age of clinical signs onset varies in different type of lysosomal diseases, from the first months of life or early childhood in severe form, to adulthood in attenuated forms. The delay between the clinical signs onset and specific diagnosis ranged from 0.5 months to 57.91 years. CONCLUSIONS: The lysosomal storage diseases are rare diseases with childhood onset, but these early signs and symptoms are not recognized and are often taken into account when the vital organs damage becomes manifest.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Screening_studies Idioma: En Revista: Med Pharm Rep Año: 2021 Tipo del documento: Article País de afiliación: Rumanía Pais de publicación: Rumanía

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Screening_studies Idioma: En Revista: Med Pharm Rep Año: 2021 Tipo del documento: Article País de afiliación: Rumanía Pais de publicación: Rumanía