The impact of disease severity on the psychological well-being of youth affected by an inborn error of metabolism and their families: A one-year longitudinal study.

Dimitrova, Nevena; Glaus, Jennifer; Urben, Sébastien; Wüthrich, Valentine; Morisod Harari, Mathilde; Ballhausen, Diana

Dimitrova, Nevena; Glaus, Jennifer; Urben, Sébastien; Wüthrich, Valentine; Morisod Harari, Mathilde; Ballhausen, Diana.

Afiliación

Dimitrova N; Research Unit, Division of Child and Adolescent Psychiatry, Department of Psychiatry, Lausanne University Hospital, Av. d'Echallens 9, 1004 Lausanne, Switzerland.
Glaus J; Research Unit, Division of Child and Adolescent Psychiatry, Department of Psychiatry, Lausanne University Hospital, Av. d'Echallens 9, 1004 Lausanne, Switzerland.
Urben S; Research Unit, Division of Child and Adolescent Psychiatry, Department of Psychiatry, Lausanne University Hospital, Av. d'Echallens 9, 1004 Lausanne, Switzerland.
Wüthrich V; Pediatric unit for metabolic diseases, Woman-Mother-Child Department, Lausanne University Hospital, Chemin du Mont-Paisible 18, 1011 Lausanne, Switzerland.
Morisod Harari M; Liaison Psychiatry Unit, Division of Child and Adolescent Psychiatry, Department of Psychiatry, Lausanne University Hospital, Hôpital Nestlé, Niv. 05, Av. Pierre-Decker 5, 1011 Lausanne, Switzerland.
Ballhausen D; Pediatric unit for metabolic diseases, Woman-Mother-Child Department, Lausanne University Hospital, Chemin du Mont-Paisible 18, 1011 Lausanne, Switzerland.

Mol Genet Metab Rep ; 29: 100795, 2021 Dec.

Article en En | MEDLINE | ID: mdl-34504770

Palabras clave

CERQ, Cognitive Emotional Regulation Questionnaire; Disease severity; ER, Emotion Regulation; HADS, Hospital anxiety and depression scale; HR-QoL, Health-Related Quality of Life; IEM, Inborn Errors of Metabolism; Inborn errors of metabolism; Mental health; PIP, Pediatric Inventory for Parents; PKU, Phenylketonuria; Quality of life; SD, Standard Deviation; SDQ, Strengths and Difficulties Questionnaire; SE, Standard Error.; Well-being

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Observational_studies Aspecto: Patient_preference Idioma: En Revista: Mol Genet Metab Rep Año: 2021 Tipo del documento: Article País de afiliación: Suiza Pais de publicación: Estados Unidos

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