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Translation and validation of the Urdu version of the European organization for research and treatment of cancer core quality of life questionnaire (EORTC QLQ-C30) and brain module (QLQ-BN20) in primary brain tumor patients.
Zahid, Nida; Martins, Russell Seth; Zahid, Wajeeha; Khalid, Wardah; Azam, Iqbal; Bhamani, Shireen Shehzad; Asad, Nargis; Ahmad, Khabir; Jabbar, Adnan Abdul; Shamim, Muhammad Shahzad; Khan, Rashid Jooma; Javed, Gohar; Bari, Ehsan; Enam, Syed Ather.
Afiliación
  • Zahid N; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan. nida.zahid@aku.edu.
  • Martins RS; Medical College, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Zahid W; Department of Community Health Sciences, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Khalid W; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Azam I; Department of Community Health Sciences, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Bhamani SS; School of Nursing and Midwifery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Asad N; Department of Psychiatry, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Ahmad K; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Jabbar AA; Department of Oncology, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Shamim MS; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Khan RJ; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Javed G; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Bari E; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
  • Enam SA; Department of Surgery, Aga Khan University Hospital, Stadium Road, Karachi, 74800, Pakistan.
J Patient Rep Outcomes ; 5(1): 79, 2021 Sep 06.
Article en En | MEDLINE | ID: mdl-34487251
Quality of life (QoL) is an important facet of well-being for patients with primary brain tumors (PBTs), as these individuals face significant distress during the course of their illness and treatment. It is important to have valid and reliable tools to accurately measure the QoL of patients with PBTs. The EORTC QLQ-C30 (European Organization for Research and Treatment of Cancer Quality of Life Questionnaire) and its brain tumor-specific module EORTC QLQ-BN20 (EORTC QLQ-Brain Neoplasms 20) are exactly that.However, the use of the EORTC QLQ-C30 and QLQ-BN20 is limited in Pakistan, where the national language is Urdu, and the majority of patients are of low socioeconomic backgrounds. Since no Urdu translations of the EORTC QLQ-C30 and QLQ-BN20 exist, we aimed to translate and validate these tools to enable their applicability in Pakistan.The Urdu versions of the EORTC QLQ-C30 and QLQ-BN20 demonstrated good validity amongst patients with PBTs. Thus, our study confirms the EORTC QLQ-C30 and QLQ-BN20 as valuable clinical tools for the measurement of QoL in primary brain tumors patients within the linguistic, cultural and socioeconomic context of Pakistan.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Guideline / Qualitative_research Aspecto: Patient_preference Idioma: En Revista: J Patient Rep Outcomes Año: 2021 Tipo del documento: Article País de afiliación: Pakistán Pais de publicación: Alemania

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Guideline / Qualitative_research Aspecto: Patient_preference Idioma: En Revista: J Patient Rep Outcomes Año: 2021 Tipo del documento: Article País de afiliación: Pakistán Pais de publicación: Alemania