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Persons with dementia and informal caregivers prioritizing care: A mixed-methods study.
Wammes, Joost D; Labrie, Nanon H M; Agogo, George O; Monin, Joan K; de Bekker-Grob, Esther W; MacNeil Vroomen, Janet L.
Afiliación
  • Wammes JD; Department of Internal Medicine, Section of Geriatric Medicine, Amsterdam Public Health Research Institute Amsterdam UMC, University of Amsterdam Amsterdam The Netherlands.
  • Labrie NHM; Athena Institute Vrije Universiteit Amsterdam Amsterdam The Netherlands.
  • Agogo GO; Center for Disease Control and Prevention (CDC) Village Market Nairobi Kenya.
  • Monin JK; Department of Social and Behavioral Sciences Yale School of Public Health New Haven Connecticut USA.
  • de Bekker-Grob EW; Erasmus School of Health Policy & Management Erasmus University Rotterdam Rotterdam The Netherlands.
  • MacNeil Vroomen JL; Erasmus Choice Modelling Centre Erasmus University Rotterdam Rotterdam The Netherlands.
Alzheimers Dement (N Y) ; 7(1): e12193, 2021.
Article en En | MEDLINE | ID: mdl-34401467
INTRODUCTION: More persons with dementia are residing in the community as many countries shift from residential care to home and community care. Although there are many forms of care and support available to avoid crisis situations and prolong community living, it remains unclear how these are valued by community-dwelling persons with dementia and their informal caregivers. Understanding perspectives of persons with dementia and informal caregivers on care characteristics is a vital step in valuing care services. This study aims to prioritize care characteristics for community-dwelling persons with dementia and informal caregivers with the use of an innovative mixed-methods approach. METHODS: Six mixed focus groups were conducted in The Netherlands with persons with dementia (n = 23) and informal caregivers (n = 20), including a quantitative ranking exercise that prioritized seven care and support characteristics from "most important" to "least important," followed by a group discussion about the prioritization. Audio recordings were transcribed and analyzed using thematic analysis. RESULTS: The ranking exercise and discussion showed that persons with dementia favored in-home care, help with daily activities, and social activities, whereas informal caregivers favored social activities, information about dementia, navigating the health care system, and emotional support. DISCUSSION: Persons with dementia prioritized day-to-day activities, whereas informal caregivers preferred assistance with organizing care and coping with caregiving. This study created a method to capture the care preferences of persons with dementia and informal caregivers.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Qualitative_research Idioma: En Revista: Alzheimers Dement (N Y) Año: 2021 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Qualitative_research Idioma: En Revista: Alzheimers Dement (N Y) Año: 2021 Tipo del documento: Article Pais de publicación: Estados Unidos