Exploring the motivations of research participants who chose not to learn medically actionable secondary genetic findings about themselves.

Schupmann, Will; Miner, Skye A; Sullivan, Haley K; Glover, Jamie R; Hall, Janet E; Schurman, Shepherd H; Berkman, Benjamin E

Schupmann, Will; Miner, Skye A; Sullivan, Haley K; Glover, Jamie R; Hall, Janet E; Schurman, Shepherd H; Berkman, Benjamin E.

Afiliación

Schupmann W; National Institutes of Health, Department of Bioethics, Bethesda, MD, USA.
Miner SA; National Institutes of Health, Department of Bioethics, Bethesda, MD, USA.
Sullivan HK; Graduate School of Arts and Sciences, Harvard University, Cambridge, MA, USA.
Glover JR; Social and Scientific Systems, Durham, NC, USA.
Hall JE; National Institutes of Health, National Institute of Environmental Health Sciences, Clinical Research Branch, Durham, NC, USA.
Schurman SH; National Institutes of Health, National Institute of Environmental Health Sciences, Clinical Research Branch, Durham, NC, USA.
Berkman BE; National Institutes of Health, Department of Bioethics; National Human Genome Research Institute, Bethesda, MD, USA. berkmanbe@mail.nih.gov.

Genet Med ; 23(12): 2281-2288, 2021 12.

Article en En | MEDLINE | ID: mdl-34326490

Asunto(s)

Motivación; Humanos; Estados Unidos

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Motivación Tipo de estudio: Diagnostic_studies / Prognostic_studies Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos

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