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Self-management for pulmonary fibrosis: Insights from people living with the disease and healthcare professionals.
Lee, Joanna Y T; Tikellis, Gabriella; Glaspole, Ian; Khor, Yet H; Symons, Karen; Holland, Anne E.
Afiliación
  • Lee JYT; Department of Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Victoria, Australia. Electronic address: joanna.lee2@monash.edu.
  • Tikellis G; Department of Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Victoria, Australia. Electronic address: gabriella.tikellis@monash.edu.
  • Glaspole I; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Victoria, Australia. Electronic address: i.glaspole@alfred.org.au.
  • Khor YH; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Victoria, Australia; Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, Victoria, Australia; Institute for Breathing and Sleep, Melbourne, Victoria, Australia. Electronic address: yet.KHOR@austin.org.au.
  • Symons K; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Victoria, Australia. Electronic address: K.Symons@alfred.org.au.
  • Holland AE; Department of Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Victoria, Australia; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Victoria, Australia; Institute for Breathing and Sleep, Melbourne, Victoria, Australia; Department of Physiotherapy,
Patient Educ Couns ; 105(4): 956-964, 2022 04.
Article en En | MEDLINE | ID: mdl-34272128
OBJECTIVE: People with pulmonary fibrosis (PF) consider self-management essential for maintaining health. This study aims to explore the needs and expectations of PF self-management from the patient and healthcare professionals (HCPs) perspectives. METHODS: Semi-structured interviews were conducted with people with PF and HCPs. Purposive sampling was used to recruit participants. Thematic analysis was performed using the principles of grounded theory. RESULTS: 18 individuals with PF and 15 HCPs were interviewed. Common self-management components reported included exercise, nutrition, maintaining healthy mind, avoiding infections, recognising deterioration and seeking help, managing symptoms and treatments, social support, and end-of-life planning. Both groups felt that effective self-management required individualised strategies, supports, and reliable information. People with PF identified access to personal health data and self-acceptance as part of self-management. HCPs highlighted the importance of accessible supports and managing patient expectations of disease course and treatments. Some HCPs concerned about missed detection of deterioration and suggested that self-management strategies for PF may differ to other lung diseases. CONCLUSION: This study identified components important for self-management in PF and provides a basis for designing a PF self-management package. PRACTICE IMPLICATIONS: Self-management of PF can be facilitated with individualised support from HCPs and reliable information that is accessible.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fibrosis Pulmonar / Automanejo Tipo de estudio: Qualitative_research Límite: Humans Idioma: En Revista: Patient Educ Couns Año: 2022 Tipo del documento: Article Pais de publicación: Irlanda
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fibrosis Pulmonar / Automanejo Tipo de estudio: Qualitative_research Límite: Humans Idioma: En Revista: Patient Educ Couns Año: 2022 Tipo del documento: Article Pais de publicación: Irlanda