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Direct and indirect costs and cost-driving factors of Tuberous sclerosis complex in children, adolescents, and caregivers: a multicenter cohort study.
Grau, Janina; Zöllner, Johann Philipp; Schubert-Bast, Susanne; Kurlemann, Gerhard; Hertzberg, Christoph; Wiemer-Kruel, Adelheid; Bast, Thomas; Bertsche, Astrid; Bettendorf, Ulrich; Fiedler, Barbara; Hahn, Andreas; Hartmann, Hans; Hornemann, Frauke; Immisch, Ilka; Jacobs, Julia; Kieslich, Matthias; Klein, Karl Martin; Klotz, Kerstin A; Kluger, Gerhard; Knuf, Markus; Mayer, Thomas; Marquard, Klaus; Meyer, Sascha; Muhle, Hiltrud; Müller-Schlüter, Karen; Noda, Anna H; Ruf, Susanne; Sauter, Matthias; Schlump, Jan-Ulrich; Syrbe, Steffen; Thiels, Charlotte; Trollmann, Regina; Wilken, Bernd; Willems, Laurent M; Rosenow, Felix; Strzelczyk, Adam.
Afiliación
  • Grau J; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Zöllner JP; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Schubert-Bast S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Kurlemann G; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Hertzberg C; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Wiemer-Kruel A; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Bast T; Department of Neuropediatrics, Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Bertsche A; St. Bonifatius Hospital, Lingen, Germany.
  • Bettendorf U; Department of Neuropediatrics, Vivantes Klinikum Neukölln, Berlin, Germany.
  • Fiedler B; Epilepsy Center Kork, Clinic for Children and Adolescents, Kehl-Kork, Germany.
  • Hahn A; Epilepsy Center Kork, Clinic for Children and Adolescents, Kehl-Kork, Germany.
  • Hartmann H; Department of Neuropediatrics, University Hospital for Children and Adolescents, Rostock, Germany.
  • Hornemann F; Neuropediatric Practice, Hirschaid, Germany.
  • Immisch I; Department of General Pediatrics, Division of Neuropediatrics, University Hospital Münster, Münster, Germany.
  • Jacobs J; Department of Neuropediatrics, Justus-Liebig-University Gießen, Gießen, Germany.
  • Kieslich M; Department of Neuropediatrics, Clinic for Pediatric Kidney, Liver and Metabolic Diseases, Hannover Medical School, Hannover, Germany.
  • Klein KM; Department of Neuropediatrics, Leipzig University Hospital for Children and Adolescents, Leipzig, Germany.
  • Klotz KA; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg (Lahn), Germany.
  • Kluger G; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg i.Br., Germany.
  • Knuf M; Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
  • Mayer T; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Marquard K; Department of Neuropediatrics, Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Meyer S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Muhle H; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Müller-Schlüter K; Departments of Clinical Neurosciences, Medical Genetics and Community Health Sciences, Hotchkiss Brain Institute & Alberta Children's Hospital Research Institute, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
  • Noda AH; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg i.Br., Germany.
  • Ruf S; Berta-Ottenstein-Programme, Faculty of Medicine, University of Freiburg, Freiburg i.Br., Germany.
  • Sauter M; Clinic for Neuropediatrics and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schön Clinic Vogtareuth, Vogtareuth, Germany.
  • Schlump JU; Research Institute, Rehabilitation, Transition and Palliation, PMU Salzburg, Salzburg, Austria.
  • Syrbe S; Department of Pediatrics, Klinikum Worms, Worms, Germany.
  • Thiels C; Department of Pediatrics, University Medicine Mainz, Mainz, Germany.
  • Trollmann R; Epilepsy Center Kleinwachau, Dresden-Radeberg, Germany.
  • Wilken B; Department of Pediatric Neurology, Psychosomatics and Pain Management, Klinikum Stuttgart, Stuttgart, Germany.
  • Willems LM; Department of Neuropediatrics, Children's Hospital at University Medical Center Homburg, Homburg, Germany.
  • Rosenow F; Department of Neuropediatrics, Christian-Albrechts-University Kiel & University Hospital Schleswig-Holstein, Campus Kiel, Kiel, Germany.
  • Strzelczyk A; Epilepsy Center for Children, Brandenburg Medical School, University Hospital Neuruppin, Neuruppin, Germany.
Orphanet J Rare Dis ; 16(1): 282, 2021 06 21.
Article en En | MEDLINE | ID: mdl-34154622
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Esclerosis Tuberosa Tipo de estudio: Etiology_studies / Health_economic_evaluation / Incidence_studies / Observational_studies / Risk_factors_studies Límite: Adolescent / Adult / Child / Child, preschool / Humans / Infant País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2021 Tipo del documento: Article País de afiliación: Alemania Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Esclerosis Tuberosa Tipo de estudio: Etiology_studies / Health_economic_evaluation / Incidence_studies / Observational_studies / Risk_factors_studies Límite: Adolescent / Adult / Child / Child, preschool / Humans / Infant País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2021 Tipo del documento: Article País de afiliación: Alemania Pais de publicación: Reino Unido