Your browser doesn't support javascript.
loading
'I hated being ghosted' - The relevance of social participation for living well with post-stroke aphasia: Qualitative interviews with working aged adults.
Manning, Molly; MacFarlane, Anne; Hickey, Anne; Galvin, Rose; Franklin, Sue.
Afiliación
  • Manning M; School of Allied Health, Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
  • MacFarlane A; School of Medicine, Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
  • Hickey A; Department of Psychology, Royal College of Surgeons in Ireland, Dublin, Ireland.
  • Galvin R; School of Allied Health, Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
  • Franklin S; School of Allied Health, Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
Health Expect ; 24(4): 1504-1515, 2021 08.
Article en En | MEDLINE | ID: mdl-34132006
BACKGROUND: In the context of increasing incidence of stroke in working aged adults, there is a specific need to explore the views of working aged adults with post-stroke aphasia, whose communication difficulties may result in restricted social participation, loss of employment and changed relationship and parenting roles. This study aimed to explore the perspectives of working aged adults with post-stroke aphasia in relation to social participation and living well with aphasia (LWA). DESIGN AND PARTICIPANTS: We conducted qualitative interviews with 14 people with post-stroke aphasia (PWA). Data were analysed following principles of reflexive, thematic analysis. Patient or Public Contribution: A Public and Patient Involvement aphasia advisory group inputted into the study design and interpretation of data. RESULTS: Social participation spanned 5 themes: Relationships and roles; Social support; Peer network, Aphasia awareness; and Employment and training. Meaningful, interesting social participation for LWA is individually defined. Working aged PWA may require flexible support with parenting, accessing a diverse social network and finding opportunities for meaningful social connection, training and employment. CONCLUSIONS: The findings extend knowledge of social participation in the context of LWA for working aged adults by elucidating the individually defined nature of meaningful participation and how PWA may need flexible support with parenting, accessing a diverse social network and training and employment. For aphasia research, policy and services to be relevant, it is crucial that working aged PWA are meaningfully involved in setting the aphasia agenda.
Asunto(s)
Palabras clave
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Afasia / Accidente Cerebrovascular / Rehabilitación de Accidente Cerebrovascular Tipo de estudio: Etiology_studies / Qualitative_research Límite: Adult / Aged / Humans / Middle aged Idioma: En Revista: Health Expect Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Año: 2021 Tipo del documento: Article País de afiliación: Irlanda Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Afasia / Accidente Cerebrovascular / Rehabilitación de Accidente Cerebrovascular Tipo de estudio: Etiology_studies / Qualitative_research Límite: Adult / Aged / Humans / Middle aged Idioma: En Revista: Health Expect Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Año: 2021 Tipo del documento: Article País de afiliación: Irlanda Pais de publicación: Reino Unido