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The National Children's Study Archive Model: A 3-Tier Framework for Dissemination of Data and Specimens for General Use and Secondary Analysis.
Gilbertson, Peter K; Forrester, Susan; Andrews, Linda; McCann, Kathleen; Rogers, Lydia; Park, Christina; Moye, Jack.
Afiliación
  • Gilbertson PK; Social & Scientific Systems Inc., Silver Spring, MD, United States.
  • Forrester S; Social & Scientific Systems Inc., Silver Spring, MD, United States.
  • Andrews L; Social & Scientific Systems Inc., Silver Spring, MD, United States.
  • McCann K; Social & Scientific Systems Inc., Silver Spring, MD, United States.
  • Rogers L; Social & Scientific Systems Inc., Silver Spring, MD, United States.
  • Park C; National Institutes of Health, Office of the Director, Bethesda, MD, United States.
  • Moye J; Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD, United States.
Front Public Health ; 9: 526286, 2021.
Article en En | MEDLINE | ID: mdl-33748052
The National Children's Study (NCS) Archive was created as a repository of samples, data, and information from the NCS Vanguard Study-a longitudinal pregnancy and birth cohort evaluating approaches to study influence of environmental exposures on child health and development-to provide qualified researchers with access to NCS materials for use in secondary research. The National Children's Study Archive (NCSA) model is a 3-tiered access model designed to make the wealth of information and materials gathered during the NCS Vanguard Study available at a user appropriate level. The NCSA model was developed as a 3-tier framework, for users of varying access levels, providing intuitive data exploration and visualization tools, an end-to-end data and sample request management system, and a restricted portal for participant-level data access with a team of experts available to assist users. This platform provides a model to accelerate transformation of information and materials from existing studies into new scientific discoveries. Trial Registration: ClinicalTrials.gov Identifier: NCT00852904 (first posted February 27, 2009).
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Protección a la Infancia / Exposición a Riesgos Ambientales Límite: Child / Female / Humans / Pregnancy Idioma: En Revista: Front Public Health Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Protección a la Infancia / Exposición a Riesgos Ambientales Límite: Child / Female / Humans / Pregnancy Idioma: En Revista: Front Public Health Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Suiza