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Patient's perspectives of living with a precancerous condition: Monoclonal gammopathy of undetermined significance (MGUS).
Murphy, Blain; McShane, Charlene M; Santin, Olinda; Treanor, Charlene; Byrne, Bronagh; Donnelly, Michael; Anderson, Lesley A.
Afiliación
  • Murphy B; Institute for Global Food Security (IGFS), School of Biological Sciences, Queen's University Belfast, UK.
  • McShane CM; Centre for Public Health, Queen's University Belfast, UK.
  • Santin O; School of Nursing and Midwifery, Queen's University Belfast, UK.
  • Treanor C; Centre for Public Health, Queen's University Belfast, UK.
  • Byrne B; Centre for Public Health, Queen's University Belfast, UK.
  • Donnelly M; Centre for Public Health, Queen's University Belfast, UK.
  • Anderson LA; Centre for Public Health, Queen's University Belfast, UK; Aberdeen Centre for Health Data Science, University of Aberdeen, UK. Electronic address: lesley.anderson@abdn.ac.uk.
Eur J Oncol Nurs ; 51: 101901, 2021 Apr.
Article en En | MEDLINE | ID: mdl-33503552
PURPOSE: The aim of this study was to investigate patient experiences of living with monoclonal gammopathy of undetermined significance (MGUS). Living with a premalignant condition such as MGUS may elicit negative psychosocial effects including increased anxiety and fear of progression to cancer. To date, no study utilising qualitative methodology has explored the lived experiences of MGUS patients. METHODS: Data was collected via two focus groups and six telephone interviews. MGUS patients (n=14) were recruited via nurse-led haematology telephone-clinics in Northern Ireland. Interviews were transcribed verbatim and the data subjected to thematic analysis. OUTCOME: Thematic analysis identified 3 overarching themes; (1) The psychosocial impact of an MGUS diagnosis, (2) Knowledge of MGUS and (3) Experiences of MGUS health services. Patients with MGUS reported experiencing poor psychological adjustment to their condition particularly at the point of diagnosis and approaching follow-up appointments. Feelings of isolation, poor information-provision, increased uncertainty and limited psychosocial support for MGUS patients were also reported. Patients did however reflect positively on their experience of being followed up via nurse-led telephone clinics. CONCLUSIONS: Provision of patient friendly information guides at diagnosis, and additional psychosocial support services such as nurse-led telephone clinics and coordinated patient groups may help MGUS patients adjust better to their diagnosis and in doing so improve quality of life in this patient population.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Pacientes / Lesiones Precancerosas / Gammopatía Monoclonal de Relevancia Indeterminada / Actitud Frente a la Salud Tipo de estudio: Qualitative_research Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Eur J Oncol Nurs Asunto de la revista: ENFERMAGEM / NEOPLASIAS Año: 2021 Tipo del documento: Article Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Pacientes / Lesiones Precancerosas / Gammopatía Monoclonal de Relevancia Indeterminada / Actitud Frente a la Salud Tipo de estudio: Qualitative_research Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Eur J Oncol Nurs Asunto de la revista: ENFERMAGEM / NEOPLASIAS Año: 2021 Tipo del documento: Article Pais de publicación: Reino Unido