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A systematic scoping review and textual narrative synthesis of long-term health-related quality of life outcomes for adolescent idiopathic scoliosis.
Essex, Ryan; Bruce, Gemma; Dibley, Molly; Newton, Paul; Dibley, Lesley.
Afiliación
  • Essex R; Centre for Chronic Illness and Ageing, The Institute for Lifecourse Development, The University of Greenwich, Old Royal Naval College, Park Row, Greenwich, London, SE10 9LS, UK. Electronic address: r.w.essex@gre.ac.uk.
  • Bruce G; The Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, HA7 4LP, UK. Electronic address: gemma.bruce1@nhs.net.
  • Dibley M; Patient and Public Involvement Lead, UK. Electronic address: MXD005@student.bham.ac.uk.
  • Newton P; Centre for Chronic Illness and Ageing, The Institute for Lifecourse Development, The University of Greenwich, Old Royal Naval College, Park Row, Greenwich, London, SE10 9LS, UK. Electronic address: P.D.Newton@greenwich.ac.uk.
  • Dibley L; Centre for Chronic Illness and Ageing, The Institute for Lifecourse Development, The University of Greenwich, Old Royal Naval College, Park Row, Greenwich, London, SE10 9LS, UK. Electronic address: L.B.Dibley@greenwich.ac.uk.
Int J Orthop Trauma Nurs ; 40: 100844, 2021 Feb.
Article en En | MEDLINE | ID: mdl-33500208
INTRODUCTION: Idiopathic scoliosis is a musculoskeletal condition leading to deformity of the spinal column. There is strong evidence reporting short term health-related quality of life outcomes, but less is known about the longer-term impact of adolescent idiopathic scoliosis (AIS). This paper reports the current evidence on long-term non-clinical outcomes of AIS. METHOD: A systematic scoping literature review combining descriptive and textual narrative synthesis was undertaken. Studies were included if they: sampled or followed up participants at least 10 years after diagnosis and/or treatment, contained health-related quality of life data that could be extracted, where the intervention (or diagnosis in the case of untreated) occurred after 1980, and where data was extractable for modern rod and screw or fusion techniques, non-surgical interventions or untreated patients. RESULTS: Twenty-three studies were included. Overall, the HRQOL measures utilised by these studies suggest that HRQOL is not related to participant demographics or AIS characteristics or type or extent of surgical intervention. Some studies suggest that those with AIS scored worse than controls. DISCUSSION: Results suggest that AIS participants had a generally good quality of life, although this was often worse than those without AIS. No other clear relationships were found. The available literature fails to address more fundamental questions about how HRQOL is conceptualised for those with AIS, and there is value in pursuing qualitative inquiry in this area.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Escoliosis Tipo de estudio: Qualitative_research / Systematic_reviews Aspecto: Patient_preference Límite: Adolescent / Humans Idioma: En Revista: Int J Orthop Trauma Nurs Año: 2021 Tipo del documento: Article Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Escoliosis Tipo de estudio: Qualitative_research / Systematic_reviews Aspecto: Patient_preference Límite: Adolescent / Humans Idioma: En Revista: Int J Orthop Trauma Nurs Año: 2021 Tipo del documento: Article Pais de publicación: Reino Unido