Patient's thoughts and expectations about centres of expertise for PKU.

van Wegberg, A M J; MacDonald, A; Abeln, D; Hagedorn, T S; Lange, E; Trefz, F; van Vliet, D; van Spronsen, F J

van Wegberg, A M J; MacDonald, A; Abeln, D; Hagedorn, T S; Lange, E; Trefz, F; van Vliet, D; van Spronsen, F J.

Afiliación

van Wegberg AMJ; Department of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, 9713 GZ, Groningen, The Netherlands.
MacDonald A; Dietetic Department, Birmingham Children's Hospital, Birmingham, B4 6NH, UK.
Abeln D; Dutch Society for PKU, Tiel, The Netherlands.
Hagedorn TS; Deutsche Interessengemeinschaft Phenylketonurie, Fürth, Germany.
Lange E; National Society for Phenylketonuria United Kingdom, Preston, UK.
Trefz F; University Children's Hospital, Dietmar Hopp Metabolic Centre, 69120, Heidelberg, Germany.
van Vliet D; Department of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, 9713 GZ, Groningen, The Netherlands.
van Spronsen FJ; Department of Metabolic Diseases, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, 9713 GZ, Groningen, The Netherlands. f.j.van.spronsen@umcg.nl.

Orphanet J Rare Dis ; 16(1): 2, 2021 01 06.

Article en En | MEDLINE | ID: mdl-33407655

Asunto(s)

Motivación; Fenilcetonurias; Alemania; Humanos; Países Bajos; Reino Unido

Palabras clave

Centre of expertise; European reference network; Patients view; Phenylketonuria

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fenilcetonurias / Motivación Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2021 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido

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