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Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia.
Duncanson, Emily; Bennett, Paul N; Viecelli, Andrea; Dansie, Kathryn; Handke, William; Tong, Allison; Palmer, Suetonia; Jesudason, Shilpanjali; McDonald, Stephen P; Morton, Rachael L.
Afiliación
  • Duncanson E; Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
  • Bennett PN; Faculty of Health Medicine Nursing and Behavioural Sciences, Deakin University, Burwood, Victoria, Australia.
  • Viecelli A; School of Medicine, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.
  • Dansie K; Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
  • Handke W; Consumer representative, Private citizen, Canberra, ACT, Australia.
  • Tong A; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
  • Palmer S; Department of Medicine, University of Otago, Christchurch, New Zealand.
  • Jesudason S; Central and Northern Adelaide Renal and Transplantation Services (CNARTS), Royal Adelaide Hospital, Adelaide, South Australia, Australia.
  • McDonald SP; Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia.
  • Morton RL; Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
BMJ Open ; 10(11): e039014, 2020 11 06.
Article en En | MEDLINE | ID: mdl-33158824
INTRODUCTION: People receiving haemodialysis experience a high symptom burden and impaired quality of life. The use of patient-reported outcome measures (PROMs) is increasing in nephrology care, however their acceptability, utility and impacts are not well understood. METHODS AND ANALYSIS: We describe a protocol for a qualitative study to evaluate the feasibility and acceptability of electronic-PROMs (e-PROMs) data capture and feedback in haemodialysis following the pilot Symptom monitoring WIth Feedback Trial (SWIFT). SWIFT involves linkage of e-PROMs data, including symptoms and health-related quality of life, to the Australia and New Zealand Dialysis and Transplant Registry with feedback to patients' treating nephrologists and nurse unit managers. Focus groups and semistructured interviews will be conducted with nephrologists (n=15), dialysis nurses (n=24) and patients receiving haemodialysis (n=24) from six dialysis units in Australia. Question topics will include the technical and clinical feasibility and acceptability of e-PROMs reporting and feedback (including the barriers and enablers to uptake) and perceived impact on patient care and outcomes. Transcripts will be analysed thematically and guided by Normalisation Process Theory. ETHICS AND DISSEMINATION: Ethics approval was obtained from the relevant hospital Human Research Ethics Committees (HREC/18/CALHN/481; HREC/MML/54599). The findings from the SWIFT pilot and qualitative evaluation will inform the implementation of the SWIFT main trial, and more broadly, the use of e-PROMs in clinical settings and registries. TRIAL REGISTRATION NUMBER: ANZCTRN12618001976279.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Diálisis Renal Tipo de estudio: Diagnostic_studies / Guideline / Qualitative_research Aspecto: Ethics / Patient_preference Límite: Humans País/Región como asunto: Oceania Idioma: En Revista: BMJ Open Año: 2020 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Diálisis Renal Tipo de estudio: Diagnostic_studies / Guideline / Qualitative_research Aspecto: Ethics / Patient_preference Límite: Humans País/Región como asunto: Oceania Idioma: En Revista: BMJ Open Año: 2020 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Reino Unido