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Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements.
Evans, Sharon; Adam, Sarah; Adams, Sandra; Allen, Heather; Ashmore, Catherine; Bailey, Sarah; Banks, Janette; Churchill, Harriet; Cochrane, Barbara; Cook, Jennifer; Dale, Clare; Daly, Anne; Dixon, Marjorie; Dunlop, Carolyn; Ellerton, Charlotte; Emm, Anita; Firman, Sarah; Ford, Suzanne; French, Moira; Gribben, Joanna; Grimsley, Anne; Herlihy, Ide; Hill, Melanie; Judd, Shirley; Lang, Karen; Males, Jo; McDonald, Joy; McStravick, Nicola; Millington, Chloe; Newby, Camille; Noble, Catharine; Pereira, Rachel; Pinto, Alex; Robertson, Louise; Robotham, Abigail; Ross, Kathleen; Singleton, Kath; Skeath, Rachel; Terry, Allyson; Van Wyk, Karen; White, Fiona; White, Lucy; Wildgoose, Jo; Woodall, Alison; MacDonald, Anita.
Afiliación
  • Evans S; Birmingham Women's & Children's NHS Foundation Trust, Birmingham B4 6NH, UK.
  • Adam S; Royal Hospital for Children, Glasgow G51 4TF, UK.
  • Adams S; Royal Victoria Infirmary, Newcastle upon Tyne NE1 4LP, UK.
  • Allen H; Sheffield Children's NHS Foundation Trust, Sheffield S10 2TH, UK.
  • Ashmore C; Birmingham Women's & Children's NHS Foundation Trust, Birmingham B4 6NH, UK.
  • Bailey S; Cardiff and Vale UHB, Cardiff CF14 4XW, UK.
  • Banks J; Wrightington, Wigan and Leigh NHS Foundation Trust, Wigan WN1 2NN, UK.
  • Churchill H; University College London Hospitals NHS Foundation Trust, London WC1N 3BG, UK.
  • Cochrane B; Royal Hospital for Children, Glasgow G51 4TF, UK.
  • Cook J; Guy's and St Thomas' NHS Foundation Trust, London SE1 7EU, UK.
  • Dale C; University Hospitals Birmingham NHS Foundation Trust, Birmingham B15 2TH, UK.
  • Daly A; Birmingham Women's & Children's NHS Foundation Trust, Birmingham B4 6NH, UK.
  • Dixon M; Great Ormond Street Hospital for Children NHS Foundation Trust, London WC1N 3JH, UK.
  • Dunlop C; Royal Hospital for Sick Children, Edinburgh EH9 1LF, UK.
  • Ellerton C; University College London Hospitals NHS Foundation Trust, London WC1N 3BG, UK.
  • Emm A; University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK.
  • Firman S; Guy's and St Thomas' NHS Foundation Trust, London SE1 7EU, UK.
  • Ford S; The National Society for Phenylketonuria, Purley CR8 9DD, UK.
  • French M; University Hospitals of Leicester NHS Trust, Leicester LE1 5WW, UK.
  • Gribben J; Evelina London Children's Hospital, London SE1 7EH, UK.
  • Grimsley A; Belfast Health & Social Care Trust, Belfast BT9 7AB, UK.
  • Herlihy I; Great Ormond Street Hospital for Children NHS Foundation Trust, London WC1N 3JH, UK.
  • Hill M; Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield S5 7AU, UK.
  • Judd S; Royal Liverpool and Broadgreen University Hospitals NHS Trust, Liverpool L7 8XP, UK.
  • Lang K; Ninewells Hospital, Dundee DD1 9SY, UK.
  • Males J; Aneurin Bevan University Health Board Wales, Newport NP20 2UB, UK.
  • McDonald J; Belfast Health & Social Care Trust, Belfast BT9 7AB, UK.
  • McStravick N; Belfast Health & Social Care Trust, Belfast BT9 7AB, UK.
  • Millington C; Great Ormond Street Hospital for Children NHS Foundation Trust, London WC1N 3JH, UK.
  • Newby C; Bristol Royal Hospital for Children, Bristol BS2 8BJ, UK.
  • Noble C; Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield S5 7AU, UK.
  • Pereira R; Norfolk and Norwich University Hospital, Norwich NR4 7UY, UK.
  • Pinto A; Birmingham Women's & Children's NHS Foundation Trust, Birmingham B4 6NH, UK.
  • Robertson L; University Hospitals Birmingham NHS Foundation Trust, Birmingham B15 2TH, UK.
  • Robotham A; Bristol Royal Hospital for Children, Bristol BS2 8BJ, UK.
  • Ross K; Royal Aberdeen Children's Hospital, Aberdeen AB25 2ZG, UK.
  • Singleton K; University Hospital of Wales, Cardiff CF14 4XW, UK.
  • Skeath R; Great Ormond Street Hospital for Children NHS Foundation Trust, London WC1N 3JH, UK.
  • Terry A; Alder Hey Children's NHS Foundation Trust, Liverpool L12 2AP, UK.
  • Van Wyk K; Royal Manchester Children's Hospital, Manchester M13 9WL, UK.
  • White F; Royal Manchester Children's Hospital, Manchester M13 9WL, UK.
  • White L; Sheffield Children's NHS Foundation Trust, Sheffield S10 2TH, UK.
  • Wildgoose J; Bradford Teaching Hospitals NHS Foundation Trust, Bradford BD5 0NA, UK.
  • Woodall A; Salford Royal NHS Foundation Trust, Salford M6 8HD, UK.
  • MacDonald A; Birmingham Women's & Children's NHS Foundation Trust, Birmingham B4 6NH, UK.
Nutrients ; 12(8)2020 Jul 24.
Article en En | MEDLINE | ID: mdl-32722073
In phenylketonuria (PKU), variable dietary advice provided by health professionals and social media leads to uncertainty for patients/caregivers reliant on accurate, evidence based dietary information. Over four years, 112 consensus statements concerning the allocation of foods in a low phenylalanine diet for PKU were developed by the British Inherited Metabolic Disease Dietitians Group (BIMDG-DG) from 34 PKU treatment centres, utilising 10 rounds of Delphi consultation to gain a majority (≥75%) decision. A mean of 29 UK dietitians (range: 18-40) and 18 treatment centres (range: 13-23) contributed in each round. Statements encompassed all foods/food groups divided into four categories based on defined protein/phenylalanine content: (1) foods high in protein/phenylalanine (best avoided); (2) foods allowed without restriction including fruit/vegetables containing phenylalanine ≤75 mg/100 g and most foods containing protein ≤0.5 g/100 g; (3) foods that should be calculated/weighed as an exchange food if they contain protein exchange ingredients (categorized into foods with a protein content of: >0.1 g/100 g (milk/plant milks only), >0.5 g/100 g (bread/pasta/cereal/flours), >1 g/100 g (cook-in/table-top sauces/dressings), >1.5 g/100 g (soya sauces)); and (4) fruit/vegetables containing phenylalanine >75 mg/100 g allocated as part of the protein/phenylalanine exchange system. These statements have been endorsed and translated into practical dietary management advice by the medical advisory dietitians for the National Society for PKU (NSPKU).
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fenilalanina / Fenilcetonurias / Proteínas en la Dieta / Dieta con Restricción de Proteínas / Dietética Tipo de estudio: Guideline / Prognostic_studies Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Nutrients Año: 2020 Tipo del documento: Article Pais de publicación: Suiza
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Fenilalanina / Fenilcetonurias / Proteínas en la Dieta / Dieta con Restricción de Proteínas / Dietética Tipo de estudio: Guideline / Prognostic_studies Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Nutrients Año: 2020 Tipo del documento: Article Pais de publicación: Suiza