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A Comparison of the Content and Quality of Organ Donation Discussions with African American Families Who Authorize and Refuse Donation.
Siminoff, Laura A; Alolod, Gerard P; Gardiner, Heather M; Hasz, Richard D; Mulvania, Patricia A; Wilson-Genderson, Maureen.
Afiliación
  • Siminoff LA; Department of Social and Behavioral Sciences, College of Public Health, Temple University, Philadelphia, PA, USA. lasiminoff@temple.edu.
  • Alolod GP; Department of Social and Behavioral Sciences, College of Public Health, Temple University, Philadelphia, PA, USA.
  • Gardiner HM; Department of Social and Behavioral Sciences, College of Public Health, Temple University, Philadelphia, PA, USA.
  • Hasz RD; Gift of Life Donor Program, Philadelphia, PA, USA.
  • Mulvania PA; Gift of Life Donor Program, Philadelphia, PA, USA.
  • Wilson-Genderson M; Department of Social and Behavioral Sciences, College of Public Health, Temple University, Philadelphia, PA, USA.
J Racial Ethn Health Disparities ; 8(2): 485-493, 2021 04.
Article en En | MEDLINE | ID: mdl-32607720
BACKGROUND: This study compares the experiences of African American (AA) families who authorized organ donation with those who refused. METHODS: Large administrative datasets were obtained from 9 partnering Organ Procurement Organizations (OPO). Initial analyses used these data to assess authorization among African American families (n = 1651). Subsequent analyses were performed using a subsample of interview data of AA family decision makers (n = 276). Initial bivariate analyses tested differences in study variables by authorization status (donor/nondonor). Two separate multilevel logistic regressions examined associations between independent variables and family authorization. RESULTS: Analyses of the administrative datasets found that refusal was more likely when the patient was older, female, a DCD case, and not referred in a timely manner; refusal was less likely when families initiated donation conversations. Interview data revealed that families who refused donation were less likely to respond favorably to initial donation requests and reported less satisfaction with the overall approach, amount of time with OPO staff, and how questions were handled. Refusing families were also more likely to feel pressured, had less comprehensive donation discussions, and rated the OPO requesters' communication skills lower. No significant differences in organ donation attitudes were found between families who authorized donation and those refusing to donate. CONCLUSIONS: The study suggests that AA families making decisions about organ donation would benefit from culturally appropriate discussions. TRIAL REGISTRATION: Clinical Trial Notation: NCT02138227.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Negro o Afroamericano / Obtención de Tejidos y Órganos / Familia / Comunicación Tipo de estudio: Prognostic_studies / Qualitative_research Aspecto: Equity_inequality Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: J Racial Ethn Health Disparities Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Suiza
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Negro o Afroamericano / Obtención de Tejidos y Órganos / Familia / Comunicación Tipo de estudio: Prognostic_studies / Qualitative_research Aspecto: Equity_inequality Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: J Racial Ethn Health Disparities Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Suiza