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Listening to the neurological teams for multiple sclerosis: the SMART project.
Chesi, P; Marini, M G; Mancardi, G L; Patti, F; Alivernini, L; Bisecco, A; Borriello, G; Bucello, S; Caleri, F; Cavalla, P; Cocco, E; Cordioli, C; Di Giuseppe, M; Fantozzi, R; Gattuso, M; Granella, F; Liguori, M; Locatelli, L; Lugaresi, A; Marangoni, S; Moiola, L; Mutta, E; Neri, W; Pastò, L; Perini, P; Petruzzo, M; Plewnia, K; Repice, A M; Rezzonico, M; Romano, S; Rovaris, M; Sessa, E; Tortorella, C; Totaro, R; Valentino, P.
Afiliación
  • Chesi P; Health Care and Wellbeing Area, Fondazione ISTUD, Milan, Italy. PChesi@istud.it.
  • Marini MG; Health Care and Wellbeing Area, Fondazione ISTUD, Milan, Italy.
  • Mancardi GL; Department of Neuroscience, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genova and Scientific Clinical Institutes Maugeri IRCCS, Pavia-Genova Nervi, Genova, Italy.
  • Patti F; Department of Medical and Surgical Science, and Advanced Technologies, G.F. Ingrassia, Multiple Sclerosis Center, University of Catania, Catania, Italy.
Neurol Sci ; 41(8): 2231-2240, 2020 Aug.
Article en En | MEDLINE | ID: mdl-32198654
OBJECTIVE: Aim of the research was to define the quality of life of Italian neurologists and nurses' professional caring for multiple sclerosis, to understand their living the clinical practice and identify possible signals of compassion fatigue. MATERIAL AND METHODS: One hundred five neurologists and nurses from 30 Italian multiple sclerosis centres were involved in an online quali-quantitative survey on the organization of care, combined with the Satisfaction and Compassion Fatigue Test and a collection of narratives. Descriptive statistics of the quantitative data were integrated with the results obtained by the narrative medicine methods of analysis. RESULTS: Most of the practitioners were neurologists, 46 average years old, 69% women, 43% part time dedicated to multiple sclerosis. An increased number of patients in the last 3 years were referred in 29 centres. Differences were found between neurologists and nurses. Physicians showed higher risks of burnout, reporting intensive working paces, lack of medical personnel, and anxiety caused by the precarious employment conditions. Nurses appeared more satisfied, although the reference to the lack of spaces, and the cross professional roles risk of compassion fatigue. Both positive and negative relationships of care were depicted as influencing the professional quality of life. CONCLUSION: The interviewed neurological teams need to limit the risk of compassion fatigue, which appeared from the first years of the career. The prevalence of the risk among neurologists suggests more awareness among scientific societies and health care managers on the risk for this category, as first step to prevent it.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Esclerosis Múltiple Tipo de estudio: Observational_studies / Prevalence_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Neurol Sci Asunto de la revista: NEUROLOGIA Año: 2020 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Italia
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Esclerosis Múltiple Tipo de estudio: Observational_studies / Prevalence_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Neurol Sci Asunto de la revista: NEUROLOGIA Año: 2020 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Italia