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Using Rasch and factor analysis to develop a Proxy-Reported health state classification (descriptive) system for Cerebral Palsy.
Bahrampour, Mina; Downes, Martin; Boyd, Roslyn N; Scuffham, Paul A; Byrnes, Joshua.
Afiliación
  • Bahrampour M; Centre for Applied Health Economics, School of Medicine & Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.
  • Downes M; Centre for Applied Health Economics, School of Medicine & Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.
  • Boyd RN; Queensland Cerebral Palsy and Rehabilitation Research Centre, Centre for Children's Health Research, The University of Queensland, Brisbane, Australia.
  • Scuffham PA; Centre for Applied Health Economics, School of Medicine & Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.
  • Byrnes J; Centre for Applied Health Economics, School of Medicine & Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.
Disabil Rehabil ; 43(18): 2647-2655, 2021 09.
Article en En | MEDLINE | ID: mdl-31906728
PURPOSE: The Cerebral Palsy quality of life instrument is a well-known health-related quality of life measure for children with Cerebral Palsy. Due to its length it is not suitable as the basis of a preference-based instrument. The aim of this study is to develop a short version of the Cerebral Palsy quality of life instrument that can subsequently be scored as a multi-attribute utility instrument through assigning preference-based values. METHODS: A sample of 473 participants who have a child with Cerebral Palsy completed the Cerebral Palsy quality of life instrument(proxy-version) instrument. After deleting questions related only to the proxy, the dimensional structure was obtained using exploratory factor analysis. Extended Rasch analysis was then undertaken to test the psychometric performance of items and select the best item to represent each dimension. Expert opinion was sought to confirm the dimensions and items. RESULTS: A six-dimension classification system was identified, in which four domains were extracted from the factor analysis. Following expert opinion, two other domains were also added, as these were considered to have significant impact on health-related quality of life in children with Cerebral Palsy. CONCLUSIONS: The combination of Factor and Rasch analysis along with consultation with patients, clinicians and experts in health-related quality-of-life instrument development, has resulted in a short version of the Cerebral Palsy quality of life instrument.IMPLICATION FOR REHABILITATIONThis study provides the first classification system for children with Cerebral Palsy.The Cerebral Palsy-six dimension (CP-6D) survey, which is a short version of Cerebral Palsy Quality Of Life instrument, can be timesaving when measuring quality of life in children with Cerebral Palsy.The short version (CP-6D) can be used in preference based measurement and generate quality adjusted life years for children with Cerebral Palsy.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Parálisis Cerebral Tipo de estudio: Prognostic_studies Aspecto: Patient_preference Límite: Child / Humans Idioma: En Revista: Disabil Rehabil Asunto de la revista: REABILITACAO Año: 2021 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Parálisis Cerebral Tipo de estudio: Prognostic_studies Aspecto: Patient_preference Límite: Child / Humans Idioma: En Revista: Disabil Rehabil Asunto de la revista: REABILITACAO Año: 2021 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Reino Unido