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Developing a Patient Charter for People Living With Conditions, Diseases, or Traumas Involving the Skin [Formula: see text].
Sivanand, Arunima; Andrews-Clay, Kathryn; Lui, Harvey.
Afiliación
  • Sivanand A; Faculty of Medicine, University of Toronto, ON, Canada.
  • Andrews-Clay K; Canadian Skin Patient Alliance, Ottawa, ON, Canada.
  • Lui H; Department of Dermatology and Skin Science, University of British Columbia, Vancouver, Canada.
J Cutan Med Surg ; 24(2): 149-153, 2020.
Article en En | MEDLINE | ID: mdl-31867998
BACKGROUND: Studies have shown disparities in the perception of skin disease burden between patients and physicians, with patients often feeling that the severity, emotional impact, and social repercussions of their skin condition are underestimated. Although physician's professional behavior is guided by documents such as the Hippocratic Oath, there are no patient-driven principles to guide healthcare interactions involving skin concerns. OBJECTIVE: To develop a concise and practical charter for patients based on their perceptions of unmet needs with the goals of helping patients express their needs and exercise their rights to accessing and utilizing the healthcare system for conditions, diseases, or traumas involving the skin. METHODS: An initial literature review examined healthcare delivery concerns of patients with skin conditions. Results were used to draft a charter that was reviewed by a Canadian patient focus group representing various skin condition advocacy groups. A revised charter was reviewed by Canadian dermatologists before being formally approved by the Canadian Skin Patient Alliance Board and endorsed by the Canadian Dermatology Association. RESULTS: The Patient Charter comprises 8 principles for providing and receiving professional services for the skin in the healthcare setting. CONCLUSIONS: This Patient Charter provides direct insights into patient priorities and will be used as an educational and advocacy tool in healthcare, occupational, and social settings. The intended goal is for the Patient Charter to empower patients and to educate health professions, government, industry, and society at large. Accordingly, the charter will be disseminated through print materials, informational videos, and social media campaigns.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Defensa del Paciente / Piel / Enfermedades de la Piel / Atención a la Salud / Dermatología / Medición de Resultados Informados por el Paciente Tipo de estudio: Qualitative_research Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Cutan Med Surg Asunto de la revista: DERMATOLOGIA Año: 2020 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Estados Unidos

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Defensa del Paciente / Piel / Enfermedades de la Piel / Atención a la Salud / Dermatología / Medición de Resultados Informados por el Paciente Tipo de estudio: Qualitative_research Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Cutan Med Surg Asunto de la revista: DERMATOLOGIA Año: 2020 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Estados Unidos