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The TOSCA Registry for Tuberous Sclerosis-Lessons Learnt for Future Registry Development in Rare and Complex Diseases.
Marques, Ruben; Belousova, Elena; Benedik, Mirjana P; Carter, Tom; Cottin, Vincent; Curatolo, Paolo; Dahlin, Maria; D'Amato, Lisa; Beaure d'Augères, Guillaume; de Vries, Petrus J; Ferreira, José C; Feucht, Martha; Fladrowski, Carla; Hertzberg, Christoph; Jansen, Anna C; Jozwiak, Sergiusz; Kingswood, John C; Lawson, John A; Macaya, Alfons; O'Callaghan, Finbar; Qin, Jiong; Sander, Valentin; Sauter, Matthias; Shah, Seema; Takahashi, Yukitoshi; Touraine, Renaud; Youroukos, Sotiris; Zonnenberg, Bernard; Nabbout, Rima.
Afiliación
  • Marques R; Novartis Farma S.p.A., Origgio, Italy.
  • Belousova E; Institute of Biomedicine (IBIOMED), University of Leon, León, Spain.
  • Benedik MP; Research and Clinical Institute of Pediatrics, Pirogov Russian National Research Medical University, Moscow, Russia.
  • Carter T; SPS Pediatricna Klinika, Ljubljana, Slovenia.
  • Cottin V; Tuberous Sclerosis Association, Nottingham, United Kingdom.
  • Curatolo P; Hôpital Louis Pradel, Claude Bernard University Lyon 1, Lyon, France.
  • Dahlin M; Tor Vergata University Hospital, Rome, Italy.
  • D'Amato L; Karolinska University Hospital, Stockholm, Sweden.
  • Beaure d'Augères G; Novartis Farma S.p.A., Origgio, Italy.
  • de Vries PJ; Association Sclérose Tubéreuse de Bourneville, Gradignan, France.
  • Ferreira JC; Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
  • Feucht M; Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal.
  • Fladrowski C; Universitätsklinik für Kinder-und Jugendheilkunde, Vienna, Austria.
  • Hertzberg C; Associazione Sclerosi Tuberosa ONLUS, Milan, Italy.
  • Jansen AC; European Tuberous Sclerosis Complex Association, In den Birken, Datteln, Germany.
  • Jozwiak S; Vivantes-Klinikum Neukölln, Berlin, Germany.
  • Kingswood JC; Pediatric Neurology Unit, Department of Pediatrics, UZ Brussel VUB, Brussels, Belgium.
  • Lawson JA; Department of Child Neurology, Warsaw Medical University, Warsaw, Poland.
  • Macaya A; Department of Neurology and Epileptology, The Children's Memorial Health Institute, Warsaw, Poland.
  • O'Callaghan F; Cardiology Clinical Academic Group, Molecular and Clinical Sciences Research Centre, St Georges University of London, London, United Kingdom.
  • Qin J; The Tuberous Sclerosis Multidisciplinary Management Clinic, Sydney Children's Hospital, Randwick, NSW, Australia.
  • Sander V; Hospital Universitari Vall d'Hebron, Barcelona, Spain.
  • Sauter M; Institute of Child Health, University College London, London, United Kingdom.
  • Shah S; Department of Pediatrics, Peking University People's Hospital, Beijing, China.
  • Takahashi Y; Tallinn Children Hospital, Tallinn, Estonia.
  • Touraine R; Klinikverbund Kempten-Oberallgäu gGmbH, Kempten, Germany.
  • Youroukos S; Novartis Healthcare Pvt. Ltd., Hyderabad, India.
  • Zonnenberg B; National Epilepsy Center, Shizuoka Institute of Epilepsy and Neurological Disorders, NHO, Shizuoka, Japan.
  • Nabbout R; Department of Genetics, CHU-Hôpital Nord, Saint Etienne, France.
Front Neurol ; 10: 1182, 2019.
Article en En | MEDLINE | ID: mdl-31798515
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies / Qualitative_research Idioma: En Revista: Front Neurol Año: 2019 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies / Qualitative_research Idioma: En Revista: Front Neurol Año: 2019 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Suiza