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Social attainment in physically well-functioning long-term survivors of pediatric brain tumour; the role of executive dysfunction, fatigue, and psychological and emotional symptoms.
Puhr, Anita; Ruud, Ellen; Anderson, Vicki; Due-Tønnessen, Bernt Johan; Skarbø, Anne-Britt; Finset, Arnstein; Andersson, Stein.
Afiliación
  • Puhr A; Department of Psychology, Faculty of Social Sciences, University of Oslo, Oslo, Norway.
  • Ruud E; Department of Pediatric Medicine, Oslo University Hospital, Oslo, Norway.
  • Anderson V; Department of Pediatric Medicine, Oslo University Hospital, Oslo, Norway.
  • Due-Tønnessen BJ; Faculty of Medicine, University of Oslo, Oslo, Norway.
  • Skarbø AB; Murdoch Children's Research Institute, The Royal Children's Hospital, Melbourne, Australia.
  • Finset A; Department of Neurosurgery, Oslo University Hospital, Oslo, Norway.
  • Andersson S; Department of Pediatric Neurology, Oslo University Hospital, Oslo, Norway.
Neuropsychol Rehabil ; 31(1): 129-153, 2021 Jan.
Article en En | MEDLINE | ID: mdl-31603026
The purpose of this cross-sectional study was to investigate long-term social attainment in physically well-functioning adult survivors of pediatric brain tumour (PBT) and identify demographic, medical, and psychological factors related to poor social outcomes, with a special focus on the significance of executive dysfunction. One hundred and fourteen PBT survivors and a healthy control group provided personal data on social outcomes, i.e., education, work, and government benefits, and completed questionnaires on executive function (EF), psychological and emotional difficulties, and fatigue. A significantly higher number of survivors compared to healthy controls reported having received educational adjustments and substantial government benefits, and significantly more survivors than controls were currently not engaged in regular employment/training. PBT survivors and healthy controls did not differ on educational level or living situation. The factors most strongly associated with poor social outcomes were self-reported executive dysfunction, difficulties with adaptive functioning, and fatigue. The findings show that physically well-functioning PBT survivors are at risk of poorer social outcomes and financial dependence in adulthood compared to their healthy peers, and underline the importance of investigating EF in short- and long-term follow-ups. Future rehabilitation efforts should focus more on compensatory strategies for executive dysfunction and improving EF skills.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias Encefálicas / Sobrevivientes Tipo de estudio: Diagnostic_studies / Etiology_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Límite: Adult / Child / Humans Idioma: En Revista: Neuropsychol Rehabil Asunto de la revista: NEUROLOGIA / PSICOLOGIA / REABILITACAO Año: 2021 Tipo del documento: Article País de afiliación: Noruega Pais de publicación: Reino Unido
Texto completo
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XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias Encefálicas / Sobrevivientes Tipo de estudio: Diagnostic_studies / Etiology_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Límite: Adult / Child / Humans Idioma: En Revista: Neuropsychol Rehabil Asunto de la revista: NEUROLOGIA / PSICOLOGIA / REABILITACAO Año: 2021 Tipo del documento: Article País de afiliación: Noruega Pais de publicación: Reino Unido