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Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.
Childerhose, Janet E; Finnila, Candice R; Yu, Joon-Ho; Koenig, Barbara A; McEwen, Jean; Berg, Stacey L; Wilfond, Benjamin S; Appelbaum, Paul S; Brothers, Kyle B.
Afiliación
  • Childerhose JE; Clinical assistant professor of pediatrics (gratis) in the Division of Pediatric Clinical and Translational Research at the University of Louisville School of Medicine.
  • Finnila CR; Clinical project manager at the HudsonAlpha Institute for Biotechnology.
  • Yu JH; Research assistant professor in the Department of Pediatrics at the University of Washington School of Medicine.
  • Koenig BA; Professor in the Institute for Health and Aging at the University of California, San Francisco (UCSF).
  • McEwen J; Program director in The Ethical, Legal and Social Implications Research Program at NHGRI before retirement.
  • Berg SL; Professor of pediatrics and medical ethics and health policy at the Texas Children's Cancer Center in the Department of Pediatrics at the Dan L. Duncan Comprehensive Cancer Center at Baylor College of Medicine.
  • Wilfond BS; Directs the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital.
  • Appelbaum PS; Dollard professor of psychiatry, medicine, and law in the Department of Psychiatry at Columbia University.
  • Brothers KB; Endowed chair of pediatric clinical and translational research at the University of Louisville School of Medicine and a faculty affiliate at the Institute for Bioethics, Health Policy, and Law at the University of Louisville.
Ethics Hum Res ; 41(5): 2-15, 2019 Sep.
Article en En | MEDLINE | ID: mdl-31541538
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Investigadores / Genómica / Investigación Biomédica / Sujetos de Investigación / Investigación Biomédica Traslacional Tipo de estudio: Qualitative_research Aspecto: Ethics Límite: Female / Humans / Male Idioma: En Revista: Ethics Hum Res Año: 2019 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Investigadores / Genómica / Investigación Biomédica / Sujetos de Investigación / Investigación Biomédica Traslacional Tipo de estudio: Qualitative_research Aspecto: Ethics Límite: Female / Humans / Male Idioma: En Revista: Ethics Hum Res Año: 2019 Tipo del documento: Article Pais de publicación: Estados Unidos