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Specialist palliative care support is associated with improved pain relief at home during the last 3 months of life in patients with advanced disease: analysis of 5-year data from the national survey of bereaved people (VOICES).
ElMokhallalati, Yousuf; Woodhouse, Natalie; Farragher, Tracey; Bennett, Michael I.
Afiliación
  • ElMokhallalati Y; Academic Unit of Palliative Care, Leeds Institute of Health Sciences (LIHS), School of Medicine, University of Leeds, Room 10.39, Level 10, Worsley Building, Clarendon Way, Leeds, LS2 9NL, UK. y.elmokhallalati@leeds.ac.uk.
  • Woodhouse N; Academic Unit of Palliative Care, Leeds Institute of Health Sciences (LIHS), School of Medicine, University of Leeds, Room 10.39, Level 10, Worsley Building, Clarendon Way, Leeds, LS2 9NL, UK.
  • Farragher T; Academic Unit of Public Health, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
  • Bennett MI; Academic Unit of Palliative Care, Leeds Institute of Health Sciences (LIHS), School of Medicine, University of Leeds, Room 10.39, Level 10, Worsley Building, Clarendon Way, Leeds, LS2 9NL, UK.
BMC Med ; 17(1): 50, 2019 03 22.
Article en En | MEDLINE | ID: mdl-30898162
BACKGROUND: Studies have shown that more than half of patients with advanced progressive diseases approaching the end-of-life report pain and that pain relief for these patients is poorest at home compared to other care settings such as acute care facilities and hospice. Although home is the most common preferred place of death, the majority of deaths occur outside the home. Specialist palliative care is associated with improved quality of life, but systematic reviews of RCTs have failed to show a consistent association with better pain relief. The aim of this study was to examine the factors associated with good pain relief at home in the last 3 months of life for people with advanced progressive disease. METHODS: Data were obtained from the National Bereavement Survey in England, a cross-sectional post-bereavement survey of a stratified random sample of 246,763 deaths which were registered in England from 2011 to 2015. From 110,311 completed surveys (45% response rate), the analysis was based on individual-level data from 43,509 decedents who were cared for at home before death. RESULTS: Decedents who experienced good pain relief at home before death were significantly more likely to have received specialist palliative care (adjusted OR = 2.67; 95% CI, 2.62 to 2.72) and to have a recorded preferred place of death (adjusted OR = 1.87; 95% CI, 1.84 to 1.90) compared to those who did not. Good pain relief was more likely to be reported by a spouse or partner of the decedents compared to reports from their son or daughter (adjusted OR = 1.50, 95% CI, 1.47 to 1.53). CONCLUSION: This study indicates that patients at home who are approaching the end-of-life experience substantially better pain relief if they receive specialist palliative care and their preferred place of death is recorded regardless of their disease aetiology.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cuidados Paliativos / Calidad de Vida / Cuidado Terminal / Actitud Frente a la Muerte / Muerte / Manejo del Dolor Tipo de estudio: Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Aspecto: Patient_preference Límite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: BMC Med Asunto de la revista: MEDICINA Año: 2019 Tipo del documento: Article Pais de publicación: Reino Unido

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cuidados Paliativos / Calidad de Vida / Cuidado Terminal / Actitud Frente a la Muerte / Muerte / Manejo del Dolor Tipo de estudio: Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Aspecto: Patient_preference Límite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: BMC Med Asunto de la revista: MEDICINA Año: 2019 Tipo del documento: Article Pais de publicación: Reino Unido