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Transforming clients into experts-by-experience: A pilot in client participation in Dutch long-term elderly care homes inspectorate supervision.
de Graaff, M B; Stoopendaal, A; Leistikow, I.
Afiliación
  • de Graaff MB; Erasmus School of Health Policy & Management, Erasmus University Rotterdam, P.O. Box 1738, 3000 DR Rotterdam, the Netherlands. Electronic address: degraaff@eshpm.eur.nl.
  • Stoopendaal A; Erasmus School of Health Policy & Management, Erasmus University Rotterdam, P.O. Box 1738, 3000 DR Rotterdam, the Netherlands.
  • Leistikow I; Erasmus School of Health Policy & Management, Erasmus University Rotterdam, P.O. Box 1738, 3000 DR Rotterdam, the Netherlands; Dutch Health and Youth Care Inspectorate, 3521 AZ Utrecht, the Netherlands.
Health Policy ; 123(3): 275-280, 2019 03.
Article en En | MEDLINE | ID: mdl-30473319
As experts-by-experience, clients are thought to give specific input for and legitimacy to regulatory work. In this paper we track a 2017 pilot by the Dutch Health and Youth Care Inspectorate that aimed to use experiential knowledge in risk regulation through engaging with clients of long-term elderly care homes. Through an ethnographic inquiry we evaluate the design of this pilot. We find how the pilot transforms selected clients into experts-by-experience through training and site visits. In this transformation, clients attempt, and fail, to bring to the fore their definitions of quality and safety, negating their potentially specific contributions. Paradoxically, in their attempts to expose valid new knowledge on the quality of care, the pilot constructs the experts-by-experience in such a way that this knowledge is unlikely to be opened up. Concurrently, we find that in their attempts to have their input seen as valid, experts-by-experience downplay the value of their experiential knowledge. Thus, we show how dominating, legitimated interpretations of (knowledge about) quality of care resonate in experimental regulatory practices that explicitly try to move beyond them, emphasizing the need for a pragmatic and reflexive engagement with clients in the supervision of long-term elderly care.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Participación del Paciente / Calidad de la Atención de Salud / Cuidados a Largo Plazo / Hogares para Ancianos Tipo de estudio: Qualitative_research Aspecto: Patient_preference Límite: Aged / Female / Humans / Male País/Región como asunto: Europa Idioma: En Revista: Health Policy Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Año: 2019 Tipo del documento: Article Pais de publicación: Irlanda
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Participación del Paciente / Calidad de la Atención de Salud / Cuidados a Largo Plazo / Hogares para Ancianos Tipo de estudio: Qualitative_research Aspecto: Patient_preference Límite: Aged / Female / Humans / Male País/Región como asunto: Europa Idioma: En Revista: Health Policy Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Año: 2019 Tipo del documento: Article Pais de publicación: Irlanda