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Assessing Burden of Care in the Patient With Cleft Lip and Palate: Factors Influencing Completion and Noncompletion of Nasoalveolar Molding.
Dean, Riley A; Wainwright, D'Arcy J; Doringo, Irene L; Teichgraeber, John F; Greives, Matthew R.
Afiliación
  • Dean RA; 1 Division of Pediatric Plastic Surgery, Department of Pediatric Surgery, McGovern Medical School at the University of Texas Health Sciences Center at Houston and Children's Memorial Hermann Hospital, Houston, TX, USA.
  • Wainwright DJ; 1 Division of Pediatric Plastic Surgery, Department of Pediatric Surgery, McGovern Medical School at the University of Texas Health Sciences Center at Houston and Children's Memorial Hermann Hospital, Houston, TX, USA.
  • Doringo IL; 1 Division of Pediatric Plastic Surgery, Department of Pediatric Surgery, McGovern Medical School at the University of Texas Health Sciences Center at Houston and Children's Memorial Hermann Hospital, Houston, TX, USA.
  • Teichgraeber JF; 1 Division of Pediatric Plastic Surgery, Department of Pediatric Surgery, McGovern Medical School at the University of Texas Health Sciences Center at Houston and Children's Memorial Hermann Hospital, Houston, TX, USA.
  • Greives MR; 1 Division of Pediatric Plastic Surgery, Department of Pediatric Surgery, McGovern Medical School at the University of Texas Health Sciences Center at Houston and Children's Memorial Hermann Hospital, Houston, TX, USA.
Cleft Palate Craniofac J ; 56(6): 759-765, 2019 07.
Article en En | MEDLINE | ID: mdl-30453775
OBJECTIVE: Evaluate the factors that influence caregiver-reported completion of nasoalveolar molding (NAM) therapy for patients with cleft lip and palate. DESIGN: An IRB-approved 30-question survey. SETTING: Outpatient clinic for patients with cleft lip. PATIENTS: Patients with unilateral or bilateral cleft lip treated with NAM therapy. INTERVENTIONS: Survey of previous experiences. MAIN OUTCOME MEASURE(S): Rate of noncompletion for patients initiating NAM therapy and identifiable causes. RESULTS: Of 94 patients who underwent NAM, 13 (13.8%) failed to complete NAM therapy. Reasons for incomplete treatment included: obstructive sleep apnea, device intolerance, tape issues, and lack of support. Patients who did not complete NAM therapy were less likely to have primary caregivers >30-year old (P = .045) and more likely to be the first child for the family (P = .021) and have a bilateral cleft (P = .03). Caregivers of NAM patients were less satisfied with the outcome (P < .001) when they did not complete therapy. CONCLUSION: This study shows that a high number of parents fail to complete this therapy for many reasons, personal and medical. More data are needed to elucidate true prevalence of NAM noncompletion and to establish evidence-based guidelines to reduce barriers to care for completing NAM treatment.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Labio Leporino / Fisura del Paladar Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research / Risk_factors_studies Límite: Adult / Child / Humans / Infant Idioma: En Revista: Cleft Palate Craniofac J Asunto de la revista: ODONTOLOGIA Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Labio Leporino / Fisura del Paladar Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research / Risk_factors_studies Límite: Adult / Child / Humans / Infant Idioma: En Revista: Cleft Palate Craniofac J Asunto de la revista: ODONTOLOGIA Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos