Strategies to Promote the Inclusion of Young Adults With Developmental Disabilities in Community-Based Health Studies.
Qual Health Res
; 29(7): 958-971, 2019 06.
Article
en En
| MEDLINE
| ID: mdl-30451071
We discuss strategies to promote the inclusion of people with developmental disabilities (DDs) in qualitative community-based research studies. Strategies were applied in three projects conducted between 2012 and 2017 that addressed issues of socioeconomic challenges, discrimination, and exclusion of children and young adults with developmental disabilities (YADD). Strategies included partnership with community organizations; inclusion of YADD, family caregivers (FCs), and service providers in advisory committees (ACs); and strategies to accommodate YADD. As part of our contribution, we discuss issues of invisibility and exclusion of individuals with DDs who have "low" functioning capacities. There is a need to review studies sampling inclusion criteria as they may constitute a barrier for participation. Preference for sampling "high" functioning individuals may reinforce exclusion in research, and replicate broader patterns of socioeconomic exclusion of individuals with disabilities. Our discussion of inclusive research is informed by critical disability studies and the underlying principle "nothing about us without us."
Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Discapacidades del Desarrollo
/
Personas con Discapacidad
/
Selección de Paciente
Tipo de estudio:
Qualitative_research
Límite:
Adult
/
Female
/
Humans
/
Male
Idioma:
En
Revista:
Qual Health Res
Asunto de la revista:
ENFERMAGEM
/
PESQUISA EM SERVICOS DE SAUDE
Año:
2019
Tipo del documento:
Article
País de afiliación:
Canadá
Pais de publicación:
Estados Unidos