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The Global State of the Genetic Counseling Profession.
Abacan, MaryAnn; Alsubaie, Lamia; Barlow-Stewart, Kristine; Caanen, Beppy; Cordier, Christophe; Courtney, Eliza; Davoine, Emeline; Edwards, Janice; Elackatt, Niby J; Gardiner, Kate; Guan, Yue; Huang, Lian-Hua; Malmgren, Charlotta Ingvoldstad; Kejriwal, Sahil; Kim, Hyon J; Lambert, Deborah; Lantigua-Cruz, Paulina Araceli; Lee, Juliana M H; Lodahl, Marianne; Lunde, Åshild; Macaulay, Shelley; Macciocca, Ivan; Margarit, Sonia; Middleton, Anna; Moldovan, Ramona; Ngeow, Joanne; Obregon-Tito, Alexandra J; Ormond, Kelly E; Paneque, Milena; Powell, Karen; Sanghavi, Kunal; Scotcher, Diana; Scott, Jenna; Juhé, Clara Serra; Shkedi-Rafid, Shiri; Wessels, Tina-Marié; Yoon, Sook-Yee; Wicklund, Catherine.
Afiliación
  • Abacan M; Institute of Human Genetics, National Institutes of Health, University of the Philippines Manila, Manila, Philippines.
  • Alsubaie L; King Abdullah Specialized Children's Hospital (KASCH), King Abdulaziz Medical City, Riyadh, Saudi Arabia.
  • Barlow-Stewart K; Northern Clinical School, Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia.
  • Caanen B; Department of Clinical Genetics, Maastricht University Medical Centre, Maastricht, The Netherlands.
  • Cordier C; Department of Genetics, SYNLAB Genetics, Lausanne, Switzerland.
  • Courtney E; Cancer Genetics Service, Division of Medical Oncology, National Cancer Centre, Singapore, Singapore.
  • Davoine E; Lausanne University Hospital (CHUV), Lausanne, Switzerland.
  • Edwards J; Transnational Alliance for Genetic Counseling, University of South Carolina Genetic Counseling Program, University of South Carolina, Columbia, SC, USA.
  • Elackatt NJ; Organization for Rare Diseases India, Cloudnine Hospitals, Bangalore, India.
  • Gardiner K; LifeLabs Genetics, Toronto, ON, Canada.
  • Guan Y; Rollins School of Public Health, Emory University, Atlanta, GA, USA.
  • Huang LH; School of Nursing, China Medical University, Taichung, Taiwan.
  • Malmgren CI; School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
  • Kejriwal S; Center for Fetal Medicine and Clinical Genetics, Karolinska University Hospital, Stockholm, Sweden.
  • Kim HJ; Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.
  • Lambert D; Department of Public Health and Caring Science, Uppsala University, Uppsala, Sweden.
  • Lantigua-Cruz PA; Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
  • Lee JMH; Institute for Public Health Genetics, University of Washington, Seattle, USA.
  • Lodahl M; Ajou Univ. Medical School and Konyang Univ. Graduate school, Yeongtong-gu, Suwon, South Korea.
  • Lunde Å; National Rare Diseases Office, Dublin, Ireland.
  • Macaulay S; University of Medical Sciences of Havana, Havana, Cuba.
  • Macciocca I; National University of Malaysia, Kuala Lumpur, Malaysia.
  • Margarit S; Department of Clinical Genetics Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.
  • Middleton A; Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.
  • Moldovan R; Division of Human Genetics, Faculty of Health Sciences, University of the Witwatersrand & The National Health Laboratory Service, Johannesburg, South Africa.
  • Ngeow J; Victorian Clinical Genetics Services, Melbourne, Australia.
  • Obregon-Tito AJ; Clínica Alemana Universidad del Desarrollo, Facultad de Medicina, Centro de Genética y Genómica, Santiago, Chile.
  • Ormond KE; Society and Ethics Research, Connecting Science, Wellcome Genome Campus, Cambridge, UK.
  • Paneque M; Faculty of Education, University of Cambridge, Cambridge, UK.
  • Powell K; Department of Psychology, Babeș-Bolyai University, Cluj-Napoca, Romania.
  • Sanghavi K; Cancer Genetics Service, Division of Medical Oncology, National Cancer Centre, Singapore, Singapore.
  • Scotcher D; University of Arkansas for Medical Sciences, Little Rock, AR, USA.
  • Scott J; Department of Genetics and Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, CA, USA. kormond@stanford.edu.
  • Juhé CS; Stanford University School of Medicine, 300 Pasteur Drive, MC 5208, Stanford, CA, USA. kormond@stanford.edu.
  • Shkedi-Rafid S; i3S - Instituto de Investigação e Inovação em Saúde, CGPP - Centre for Predictive and Preventive Genetics and IBMC - Institute for Molecular and Cell Biology, Universidade do Porto, Porto, Portugal.
  • Wessels TM; Cone Health Cancer Center, Greensboro, NC, USA.
  • Yoon SY; The Jackson Laboratory for Genomic Medicine, Farmington, CT, USA.
  • Wicklund C; Manchester Centre for Genomic Medicine, Manchester University Hospitals NHS Foundation Trust, Saint Mary's Hospital, Manchester, UK.
Eur J Hum Genet ; 27(2): 183-197, 2019 02.
Article en En | MEDLINE | ID: mdl-30291341
The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Consejeros / Asesoramiento Genético Límite: Humans Idioma: En Revista: Eur J Hum Genet Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Filipinas Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Consejeros / Asesoramiento Genético Límite: Humans Idioma: En Revista: Eur J Hum Genet Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Filipinas Pais de publicación: Reino Unido