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Including ELSI research questions in newborn screening pilot studies.
Goldenberg, Aaron J; Lloyd-Puryear, Michele; Brosco, Jeffrey P; Therrell, Bradford; Bush, Lynn; Berry, Susan; Brower, Amy; Bonhomme, Natasha; Bowdish, Bruce; Chrysler, Denise; Clarke, Angus; Crawford, Thomas; Goldman, Edward; Hiner, Sally; Howell, R Rodney; Orren, David; Wilfond, Benjamin S; Watson, Michael.
Afiliación
  • Goldenberg AJ; Department of Bioethics, Center for Genetic Research Ethics and Law, Case Western Reserve University, Cleveland, Ohio, USA. ajg10@case.edu.
  • Lloyd-Puryear M; Parent Project Muscular Dystrophy, Hackensack, New Jersey, USA.
  • Brosco JP; Institute for Bioethics and Health Policy, Mailman Center for Child Development, and Department of Pediatrics, University of Miami, Miami, Florida, USA.
  • Therrell B; University of Texas Health Science Center at San Antonio and National Newborn Screening and Global Resource Center, Austin, Texas, USA.
  • Bush L; Pediatric Clinical Genetics and Program in Women & Children's Bioethics, Columbia University Medical Center, New York, New York, USA.
  • Berry S; Departments of Pediatrics and Genetics, Cell Biology & Development, Division of Genetics and Metabolism, University of Minnesota, Minneapolis, Minnesota, USA.
  • Brower A; American College of Medical Genetics and Genomics, Bethesda, Maryland, USA.
  • Bonhomme N; Genetic Alliance, Washington, DC, USA.
  • Bowdish B; American College of Medical Genetics and Genomics, Bethesda, Maryland, USA.
  • Chrysler D; Network for Public Health Law - Mid-States Region, Ann Arbor, Michigan, USA.
  • Clarke A; Department of Medical Genetics, University Hospital Wales, Cardiff, Wales, UK.
  • Crawford T; Departments of Neurology and Pediatrics, Johns Hopkins University, Baltimore, Maryland, USA.
  • Goldman E; University of Michigan Law School and member of the Center for Bioethics in Social Science and Medicine, The University of Michigan, Ann Arbor, Michigan, USA.
  • Hiner S; Michigan Public Health Institute, Okemos, Michigan, USA.
  • Howell RR; Miller School of Medicine, University of Miami, Miami, Florida, USA.
  • Orren D; Minnesota Department of Health, Minneapolis, Minnesota, USA.
  • Wilfond BS; Department of Pediatrics, Treuman Katz Center for Pediatric Bioethics Seattle Children's Research Institute, University of Washington School of Medicine, Seattle, Washington, USA.
  • Watson M; Pediatric Clinical Genetics and Program in Women & Children's Bioethics, Columbia University Medical Center, New York, New York, USA.
Genet Med ; 21(3): 525-533, 2019 03.
Article en En | MEDLINE | ID: mdl-30100612
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Tamizaje Neonatal Tipo de estudio: Diagnostic_studies / Prognostic_studies / Screening_studies Aspecto: Ethics Límite: Humans / Newborn Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Tamizaje Neonatal Tipo de estudio: Diagnostic_studies / Prognostic_studies / Screening_studies Aspecto: Ethics Límite: Humans / Newborn Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos