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Consumer engagement critical to success in an Australian research project: reflections from those involved.
Synnot, Anneliese J; Cherry, Catherine L; Summers, Michael P; Stuckey, Rwth; Milne, Catherine A; Lowe, Dianne B; Hill, Sophie J.
Afiliación
  • Synnot AJ; Centre for Health Communication and Participation, School of Psychology and Public Health, College of Science, Health and Engineering, La Trobe University, Kingsbury Drive, Bundoora, Vic. 3068, Australia.
  • Cherry CL; Centre for Biomedical Research, Burnet Institute 85 Commercial Road, Melbourne, Vic. 3004, Australia.
  • Summers MP; Centre for Health Communication and Participation, School of Psychology and Public Health, College of Science, Health and Engineering, La Trobe University, Kingsbury Drive, Bundoora, Vic. 3068, Australia.
  • Stuckey R; Centre for Ergonomics and Human Factors, School of Psychology and Public Health, College of Science, Health and Engineering, La Trobe University, Kingsbury Drive, Bundoora, Melbourne, Vic. 3086, Australia.
  • Milne CA; Sydney Health Ethics, School of Public Health, University of Sydney, Sydney, NSW 2006, Australia.
  • Lowe DB; Centre for Health Communication and Participation, School of Psychology and Public Health, College of Science, Health and Engineering, La Trobe University, Kingsbury Drive, Bundoora, Vic. 3068, Australia.
  • Hill SJ; Centre for Health Communication and Participation, School of Psychology and Public Health, College of Science, Health and Engineering, La Trobe University, Kingsbury Drive, Bundoora, Vic. 3068, Australia.
Aust J Prim Health ; 24(3): 197-203, 2018 07.
Article en En | MEDLINE | ID: mdl-29875031
This paper describes the people, activities and methods of consumer engagement in a complex research project, and reflects on the influence this had on the research and people involved, and enablers and challenges of engagement. The 2.5-year Integrating and Deriving Evidence Experiences and Preferences (IN-DEEP) study was conducted to develop online consumer summaries of multiple sclerosis (MS) treatment evidence in partnership with a three-member consumer advisory group. Engagement methods included 6-monthly face-to-face meetings and email contact. Advisory group members were active in planning, conduct and dissemination and translational phases of the research. Engaging consumers in this way improved the quality of the research process and outputs by: being more responsive to, and reflective of, the experiences of Australians with MS; expanding the research reach and depth; and improving the researchers' capacity to manage study challenges. Advisory group members found contributing their expertise to MS research satisfying and empowering, whereas researchers gained confidence in the research direction. Managing the unpredictability of MS was a substantive challenge; the key enabler was the 'brokering role' of the researcher based at an MS organisation. Meaningfully engaging consumers with a range of skills, experiences and networks can make important and unforeseen contributions to research success.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Proyectos de Investigación / Participación de la Comunidad / Investigación Biomédica Límite: Humans País/Región como asunto: Oceania Idioma: En Revista: Aust J Prim Health Año: 2018 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Australia
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Proyectos de Investigación / Participación de la Comunidad / Investigación Biomédica Límite: Humans País/Región como asunto: Oceania Idioma: En Revista: Aust J Prim Health Año: 2018 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Australia